I wanted to remind anyone who is interested in attending the 7th Annual Conference for Young Women Affected by Breast Cancer that it is being held this weekend in Arlington, Virginia.

I will be attending and plan on giving updates over the weekend on the many different seminars and workshops. This will be my fifth conference since I was diagnosed in December 2001. It is such an amazing experience.

The seminars and workshops are very informative and you can pick and choose different topics depending on where you are in the treatment process or if you are newly diagnosed with breast cancer or have had a recurrence. There is something for everyone who is a young breast cancer survivor.

I also enjoy being in a room filled with women who are now not just other young survivors but friends.

My friend Deb and I were diagnosed only a few days apart and met on the YSC message boards. She came to visit me this weekend and we celebrated reaching the milestone of five years of survivorship!

www.youngsurvivorsconference.org

If you live near the Philadelphia area you can attend Living Beyond Breast Cancer's next networking meeting called Nutrition for the New Year: Managing Weight and Nutrition Through Diagnosis and Beyond.

The event will be held on Tuesday, January 30, 2007, from 6:00 p.m to 8:30 p.m. at the Philadelphia Marriott West in West Conshohocken. Debra Demille, an oncology nutrition counselor at the Joan Karnell Cancer Center at Pennsylvania Hospital will discuss the benefits of adequate nutrition during and beyond treatment and will answer questions about nutrition and fitness.

Ms. Demille will help women understand how to use eating strategies and exercise to maintain weight and well-being during treatment, manage side effects and reclaim their bodies after treatment. She also will discuss nutritional needs of families affected by breast cancer, strategies for adopting healthier eating habits, healthful eating and workout tips to reduce the risk of developing a new or recurrent breast cancer.

Contacts for the event: Janine Guglielmino or Anna Shaffer. Email janine@ibbc.org or anna@ibbc.org.

Among all sorts of news circulating as a result of the recent breast cancer conference in San Antonio, Texas is a report about an international study that has many touting Canadian chemotherapy treatments as the best therapies around -- even better than the commonly-used AC/T cocktail (doxorubicin and cyclophosphamide followed by paclitaxel) .

The winning Canadian drug combinations -- EC/T (epirubicin and cyclophosphamide followed by paclitaxel) and CEF (cyclophosphamide, epirubicin, and fluorouracil) -- are reportedly more effective at preventing breast cancer recurrence than AC/T.

About 2,104 women in Canada and the United States participated in this international study. All had undergone surgery to remove a tumor and were receiving chemotherapy. The women, aged 60 and under, all had cancer that had spread to their lymph nodes, indicating the disease was likely to spread.

The women received one of three treatments -- AC/T, EC/T, or CEF -- and results revealed that for every 100 women who received EC/T or CEF, 10 women would suffer a recurrence. For every 100 women who received AC/T, 15 women would relapse.

The lead researcher of the study says it's too soon to say whether EC/T and CEF are more effective in the long-term. So participants will be followed for some time while researchers will try to make sense of their initial findings. In the meantime, they suspect AC/T will continue to be widely used because of its lesser side effects.

There may be another explanation for the recently announced decline in breast cancer rates. And it's not nearly as promising as the first explanation may be.

A day after researchers announced that the significant drop in breast cancer cases is primarily due to fewer women using hormone replacement therapy (HRT), some experts suggest breast cancer rates are not dropping at all. Just as many women may have breast cancer, they say. They just aren't being screened for it.

"We have been aware for several years that the number of radiologists who specialize in mammography have been decreasing, and that there are places in the United States where women have difficulty getting access to mammography," Dr. Len Lichtenfeld, deputy chief medical officer for the American Cancer Society, wrote on the society's blog just after the public announcement.

"If mammography use has reached a peak and is now decreasing, we may actually be diagnosing fewer cancers when they can be most effectively treated, Lichtenfeld said. "If you don't get a mammogram, you don't diagnose a cancer."

The research linking the decline in HRT to the drop in breast cancer came from the M.D. Anderson Cancer Center in Houston and was discussed at a breast cancer conference in San Antonio on Thursday. The research, based on a report by the National Cancer Institute, showed a seven percent drop in new breast cancer cases between July 2002 and August 2003, corresponding with the results of a 2002 Women's Health Initiative study.

With media reports citing HRT as the direct cause of the drop, some worry the public is getting the wrong message -- specifically women still taking hormones or those who have taken them in the past. While women not taking hormones are breathing a sigh of relief, others are in a panic.

Dr. Katherine Sherif, director of the Drexel Center for Women's Health at Drexel University College of Medicine in Philadelphia, has spoken already with 15 patients worried about this news.

"What I have told them is that three years is too short of a time to measure the effects of a drug on breast cancer," she said. "Cancers take decades to develop, and conversely, withdrawing hormones could not result in a decrease in breast cancer in three years -- it's actually absurdly short." There are also concerns women will experience anxiety about other therapies using estrogen, such as in vitro fertilization (IVF).

The study on HRT and breast cancer may be raising more questions than answers -- which could be a good thing. More questions prompt more investigation, more study, more research. And this will hopefully help us figure out one facet of the mystery of breast cancer.

Previous posts on the topic of HRT and breast cancer are as follows.

• HRT use drops breast cancer rates drop
• Hooray for HRT!?
• HRT and smoking dramatically increases breast cancer risk
• HRT increases breast cancer risks

Oregon Senator Ron Wyden is introducing a new proposal to provide affordable, high quality, private health coverage for everyone regardless of where they work or live with the Healthy Americans Act.

"The Healthy Americans Act provides a guarantee -- health coverage for every American that is at least as good as Members of Congress receive and can never be taken away," Wyden explained. "The Act provides universal coverage for no more money than our country spends today. Better care, financial health and security, no increase in costs."

The plan outlines an approach to success by eliminating inefficiency, trips to the emergency room and incentives for prevention and wellness as the primary focus of health care. In addition, the plan provides tough cost containment and saves $1.48 trillion over ten years; and is fully paid for by spending the $2.2 trillion currently spent on health care in America.

"We're here because it is time to fix health care," Wyden added. "After decades of talk and study, it's time for action. Fixing health care is not as complicated as one might think."

Basically, every American will have access to the same opportunity and level of health care coverage that the members of Congress enjoy now. The full text of the 166-page Healthy Americans Act is available as a PDF document.

Twenty years from now, no one will die of cancer and heart disease, according to an expert in Perth, who believes advances in genetic technology will one day leave death by cancer in the dust.

Professor John Shine, director of the Garvan Institute for Medical Research in Sydney, says people will still get cancer -- they just won't die from it. He shared last week at a genetics conference in Perth, "I think there's no doubt death from cancer will be confined to the annals of history, And I think a very similar thing will apply to heart disease."

Despite reservations from some about genetic technology, Shine believes the desire to combat cancer -- once and for all -- will prevail over political opinion. And so that leaves only technical obstacles in the way. It's just a matter of time before these scientific hurdles are no longer issues.

Shine, known as the father of cloning, pioneered gene research in the 1970s when he identified the genes for insulin and the human growth hormone.

Breast cancer survivor and journalist Laura Jensen Walker is author of Reconstructing Natalie, a story of about a young Christian woman diagnosed with breast cancer.

Walker uses humor to tell the tale of Natalie Moore getting dumped by her boyfriend when he finds out she has breast cancer; being shunned by friends; leaving her church; and attending the Boob Voyage party thrown before her double mastectomy.

There is new romance to be found as Natalie undergoes reconstruction and reconstructs her life. Walker believes strongly that women diagnosed with breast cancer need to laugh -- that humor is healing.

Reconstructing Natalie has been selected as the Women of Faith Novel of the Year. Walker is also the author of the autobiographical book Thanks for the Mammogram!

The fortunes and ills of modern society. Without argument, the advent of artificial light has provided a new way of life, a freedom from the dictates of the light of day and the darkness of night. However, it appears, we are not getting enough light during the day and we are getting too much light at night. As a result, it is creating an internal hormone imbalance and we might be paying the price of progress in increased rates of breast cancer and other cancers as well.

It's called light pollution at night and energy conservation by day. To save on energy, we dimmed the indoor lighting. Many of us spend most of our days exposed to a quality of indoor lighting that is insuffcient for our health needs. At night, we are exposed to too much light when the body needs darkness. The trouble stems from the interaction between melatonin and light. At night, when melatonin should be most active in our bodies, artificial light shuts it down. According to researchers, one of the functions of melatonin is in its ability to shut down cancer cells.

At a conference in Ottawa, Canada, more than 100 psychologists, biologists, medical researchers, engineers and lighting designers are attending a conference to address the research and to explore possible solutions. As one of the researchers suggested, "we tend to live in a state of perpetual low light."

At the end of the September 30 FACTors Breast Cancer Educational Conference in Tampa, Florida, there will be a passing of the torch ceremony to celebrate the end of Ovarian Cancer Month and the start of Breast Cancer Awareness Month. But first, conference participants can gather a whole lot of information on a whole lot of topics at this 19th annual conference, hosted by the Tampa-based H. Lee Moffitt Cancer Center & Research Institute. The conference -- with a registration fee of just $25 -- includes breakfast, lunch, an art exhibit, and a variety of educational sessions which span topics such as healthy eating and exercise, genetic connections, fertility, sexuality, early onset menopause, caregiving, relaxation, communicating with children about cancer, and shaping the future.

Actress and breast cancer survivor Lynn Redgrave's daughter, Annabel Clark, will deliver the keynote address and will discuss her book, Journal: A Mother and Daughter's Recovery From Breast Cancer. There will be exhibits and door prizes and a special lunch guest too -- breast cancer survivor Dee Dee Jonrowe, the world's top female dog sledder and 23-year veteran of the Alaskan Iditarod race.

From 8:00 AM to 4:00 PM on September 30, the topic of breast cancer will be top priority for all who attend this conference in Tampa. And then the next day -- which kicks off the month of October -- breast cancer will be top priority all over the country when Breast Cancer Awareness Month commences. And we pay special attention to this disease that already gets a lot of special attention. Fortunately.

An online conference called Thinking and Memory Challenges was held on August 15, 2006. You can read the Ask the Expert transcript on breastcancer.org.

I call it chemo brain. I can't remember anyone's name. As soon as they tell me I forget. I think it's mostly because when I'm being introduced I'm so worried about remembering my own name that I don't pay attention when they tell me theirs!

This transcript on memory challenges gives us insight on what might be causing our memory problems after cancer treatment. Is the memory loss caused by chemotherapy or maybe hormonal changes or even stress and anxiety?

This online conference explains what might be the causes of memory loss and tips to get your memory back on track.

Living Fully with and Beyond Cancer is an annual conference hosted by the Anderson Network. Cancer patients, family members and caregivers can join together to share hope, support and understanding.

The conference will be held on September 7-9, 2006 at the Houston Marriott Westchase.

The Anderson Network is a unique cancer support group of more than 1,300 current and former patients who know what you're going through and can help. The members are living proof that no matter what your diagnosis and treatment, there is always hope, and a chance to live fully each day.

Few will argue the entertainment and interactive appeal of video games for a global legion of game players. Ben Sawyer of the Games for Health Project is simply planning to take video games in a new direction of greater purpose that retains all that's best in present day video games. He's not out to reinvent the wheel -- he is looking to design one of the hubs with a focus on health topics.

"This has absolutely nothing to do with the games industry needing to stand up and be apologetic about anything," insists Digital Mill president and game developer and co-director of the Games for Health Project Sawyer. "We are not doing this because game developers have a little PR problem that needs fixing. My goal is to get the industry to do this because it makes sense and it's a smart, cool thing to do, period."

What Sawyer has in mind runs along the line of HopeLab's Re-Mission, a challenging, 3D video game with 20 levels that takes the player on a journey through the bodies of young patients with different kinds of cancer. Players control a nanobot named Roxxi who destroys cancer cells, battles bacterial infections, and manages realistic, life- threatening side effects associated with the disease.

Sawyer blogs the Games for Health Project. As stated on the blog, the goal of the project is to "help foster and support a community of researchers, developers, and users of applications in game technologies and with game development talent to create new ways in playing a greater role in helping to organize and accelerate the adoption of computer games for a variety of challenges facing the world today."

In September, the Games for Health Project will hold its annual conference in Baltimore Maryland. For more details, visit the Games for Health Project blog. Fascinating stuff in innovative applications.

The University of Miami's first basketball All-American and member of the school's Athletic Hall of Fame died Friday of esophageal and colon cancer. Dick Hickox, a 5-6 guard who led the 1959-60 Hurricanes to a 23-3 record and a No. 8 ranking -- still the school's highest -- was 68 years old.

Hickox never meant to play basketball at UM. He went to Coral Gables with a friend who was homesick and who threatened to leave unless coach Bruce Hale brought in Hickox and a another friend. Hale agreed -- and had no idea what he was getting. Hickox averaged 22.1 points that season and went on to make history. He was named second All-American, alongside Providence guard Lenny Wilkens. Hickox drew crowds of 5,000 and celebrities -- like actors Burt Reynolds, George Hamilton, and then-Cassius Clay -- often cheered him on from under the basket.

Hickox spent his adult years working in the Dade County Public School system and was the business manager of the South Miami High athletic department. In March, he attended the Atlantic Coast Conference tournament in Greensboro, N.C., and received a Legends Award. It was the best basketball weekend of his life, one friend said.

Hickox is survived by his wife, his son, and his daughter.

The Young Survival Coalition (YSC) is dedicated to the concerns and issues that are unique to young women that are diagnosed with breast cancer. My involvement with the YSC came shortly after I was diagnosed in 2001. My best friend Rita found the website and I immediately went on and read post after post that was on the message board. I was so grateful to find a place where others understood. Not only were these breast cancer survivors but they were my age! Deb was the first girl I met online. We both were newly diagnosed and scared. She helped me so much because she had started her chemotherapy treatments a week before me. I got all the details and was much less scared when it was my turn.

The YSC was founded in 1998 by three young women under the age 35 that had been diagnosed with breast cancer. They realized that there was really no where for them to go for support and information. It was very disheartening to also realize that there were hardly any studies done on women 40 and under with breast cancer.

The YSC seeks to change all that through action, advocacy and awareness. Young women diagnosed with breast cancer face higher mortality rates, fertility issues and the possibility of early menopause.

The annual YSC conference is something that shouldn't be missed if you are a young survivor or a family member of a young survivor. To find out more information about the upcoming 2007 YSC conference go here. I have been to four conferences so far. It's a great feeling to know you're not alone.