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Posts with tag coping

Five first steps of life with cancer

When: Tuesday, August 21, 2007, 7 p.m. Eastern (4 p.m. Pacific)

Where: On the Internet
How will chemotherapy change my body? What are the survival rates for my type of cancer? How often should I get tests done?
A new cancer diagnosis can mean countless new questions.

Bring your worried mind to a informative show on the five steps you can take to deal with a new cancer diagnosis. The Young Survival Coaltion will help you think through decisions about everything from protecting your fertility to getting a second opinion and paying for treatment. You'll learn day-to-day coping techniques, become more aware of the resources available to you and feel more confident as you become a more aware and more empowered patient.

The guest experts will answers questions from the audience.
You can register here.

ABCs Robin Roberts' doctor takes your questions

Good Morning America coanchor Robin Roberts returned to work on Monday, a little more than one week after her breast cancer surgery. Some think her return was a bit hasty. Some think it was the absolute right thing to do. I'm of this camp -- the jump-back-into-life approach. It's exactly what I did after my surgery and throughout every step of my treatment. And while there were surely days I could have cut myself some slack, I tried to keep on my toes. It was the only way I knew how to manage the chaos of cancer.

In the spirit of helping women cope with their breast cancer diagnoses, Roberts' very own doctor offers some insightful words of wisdom. Click here for guidance about returning to work, managing through surgery and radiation, maintaining emotional health, and the importance of mammograms and self-exams.

What is your take on how Roberts is handling cancer and how her doctor is handling the topics that become critical in the fight against this disease?

Can laughter help you live longer?

I'm a bit skeptical just reading the article titled A Laugh a Day Might Keep Death Further Away. In a recent Norwegian study, adults who have a sense of humor showed to outlive those who don't find life funny. I don't know about this -- I can think of a lot of miserable people who lived very long lives!

I love to laugh. Watching comedians is one of my favorite things to do, however I don't think that is going to make me live any longer than other breast cancer survivors.

The study said that the survival edge is particularly large for those with cancer. In this study the researcher claims that a great sense of humor cut someones chances of death by about seventy percent compared with adults with a poor sense of humor.

Sven Svebak, of the medical school at Norwegian University of Science and Technology, says that past studies have shown that humor helps people cope with stress and keep a healthy immune system during stressful times. He believes that could promote survival.

William Breibart, psychiatry chief at Memorial Sloan-Kettering Cancer Center in New York city, is skeptical also. Breibart says that in the twenty two years of treating cancer patients he met a lot of funny people who died of cancer pretty quickly. He says that stage of disease and aggressiveness of tumor matter far more than a person's sense of humor.

He did add that someone who can see humor in bad side effects of chemotherapy might stick it out more for treatment and that can be a way humor affects survival.

This sounds too much like -- you need to have a positive attitude -- cancer survivors are not particularly fond of hearing that our cancer came back because we didn't have a positive attitude or we didn't have a great sense of humor -- but laughter does make life more enjoyable!

One step closer to uncertain survival

It's an unsettling journey -- the pursuit of the five-year cancer survival mark. Some say each year of cancer survival makes the future more of a sure thing. And so surviving five years -- the traditional landmark of real remission -- is a big accomplishment. But then there's the perspective of numbers that for me say I have a 93 percent chance of surviving breast cancer for five years. After that, though, there's no telling what will happen. So I am eagerly awaiting the moment when I cross the five-year finish line as I anxiously realize this very same moment may also signal a more dismal outlook.

The paradox hit me straight in the face yesterday as I was waiting for my radiation oncologist to give me another six-month all clear announcement. I was reading the January/February 2007 issue of Coping magazine while I waited. And as I flipped through the pages, I landed right at these words:

Studies show that half of all breast cancer recurrences occur after completion of five years of standard tamoxifen therapy. Additionally, a third of women with estrogen receptor-positive early breast cancer experience a recurrence, and more of half of these recurrences occur more than five years after surgery.

Now this doesn't apply directly to me. My breast cancer was estrogen receptor-negative which makes me a non-candidate for tamoxifen. And this is what scares me. My tumor was aggressive and while my treatment was also aggressive, I don't get the extra five-year protection from hormone therapy. If women taking this drug can have recurrences after completing the therapy, I wonder what's in store for me having not had it.

Maybe I'm making comparisons that don't amount to any real conclusions. Perhaps my type of disease allows for a more secure future. Or perhaps it places me on shaky ground. I don't know for sure. And I don't think I'll dive any deeper into research than I already have. Instead, I will live for today -- while enjoying the announcement my oncologist shared with me yesterday. All clear!

Is a support group right for you?

Support group facilitator and social worker Susan Abrams gives you the inside scoop on support groups and what to expect if you join.

Support groups may not be for everyone but each year thousands of women diagnosed with breast cancer join a support groups to help them cope with the disease. Some are informal gatherings and some are facilitated by a trained professional.

Years ago no one discussed breast cancer and women felt isolated. They had to deal with breast cancer completely on their own. These days women have many outlets for talking about their breast cancer, some women however still remain isolated and would benefit from joining a support group.

Some support groups might be larger and have a guest speaker on occasion to discuss specific topics. Some women like to use a support group for a year or longer after their cancer diagnosis. Usually at this time the patient doesn't want to discuss their breast cancer with friends and family, who may have had enough of the subject. They feel comfortable discussing their fears and concerns with other survivors.

Some benefits of joining a support group:

  • help in coping with the disease.
  • hear new information to discuss with your physician.
  • hear of new treatments or clinical trials.
  • reduce stress.
  • receive understanding.
  • emotional support.

Why you might not want to join a support group:

  • you feel that you would benefit more from one on one therapy.
  • you find others stories make you more anxiety-provoking than helpful.
  • you are too fragile to see someone in worse shape.
  • you might begin to doubt your own decisions when listening to others.
  • someone in the group could die which could bring on anxiety and fear.

The best way to find a support group is through your physician. Hospital-based support groups are usually very good. Trust your instincts when looking for a group, if you don't feel comfortable with one, try and find one that feels more fitting.

Dear Lindsay

Dear Lindsay,

I had no idea what awaited me the day I arrived at the Psychology Clinic nearly 18 months ago. Fresh out of the hospital, deeply distressed about my existence, and wanting so badly to stop the tears that poured from my eyes at the slightest mention of cancer, I landed in your care. How lucky for me.

I arrived fragile -- perhaps already broken -- with emotions that were wildly unmanageable. I was anxious, worried, consumed by panic. In search of peace, I told you I wanted more than anything to acquire an easy state of mind, to survive the cancer that faced me, to live without fear that I may once again encounter this disease.

You told me my search could be successful and with a healthy dose of your guided therapy -- and a whole lot more than our intended eight to 10 sessions -- I happened upon the gift of serenity. And my mind is now easy. And I have you to thank.

Thank you, Lindsay, for tending to my wilting spirit, for bracing my fall, for helping me reshape my thoughts and visions, for offering me an abundance of coping tools, for coaching me back into a world where I can bloom.

Your work may be done -- officially. But you will always be at work in my mind. You will always be the one who saved me from a lifetime of darkness. And for that, I am honored to have been your client.

Forever grateful,

Jacki

The upside of cancer

There is a downside to cancer. There's the distressing diagnosis, the shocking realization that something evil is invading cells and tissues and organs. There's surgery and treatment and loss of hair, loss of blood counts, loss of energy, loss of wellness, loss of future plans and intentions. There's the fear of recurrence and the fear of death and the fear of surviving. Cancer is dark and dismal and daunting. There is no room for argument. There is a downside to cancer.

But there is an upside to cancer too. Really, there is. And a growing body of research suggests cancer changes many people's lives -- like mine -- for the better.

"Cancer gives some survivors a renewed sense of confidence and greater appreciation for their own endurance," says one professor of medicine and public health. "The adversity of treatment may give people the sense that 'I've come through this and I'm stronger.' " Yes!

This same professor says cancer also leads survivors to question their priorities -- and to better manage them. Yes!

She also says survivors tend to find the coping strategies they develop during therapy can help them handle other life problems. Yes!

Many cancer survivors and their families turn to helping others dealing with the disease. It's part of the healing process to give back. And it feels good. Yes!

Cancer almost always is a blessing. This may not be apparent while in the trenches of a cancer fight. But when the smoke clears and the dust settles, blessings emerge. Really, they do.

The mundane mammogram

"I have a mammogram on Friday," I told my husband just two days before the test I will receive every six months for the rest of my life. The test I should not have even needed for another four years, when I hit the age of 40. The test that helped find a cancerous lump in my breast two years ago and will hopefully catch any future lumps in enough time to save my life.

The mammogram. It's a big test that hinges on one moment of disclosure from the technician who performs the procedure. The disclosure -- everything is fine or the doctor would like to see you -- predicts whether or not life goes on normally or is derailed by uncertainty. Mammograms are a big deal.

"Are you worried?" my husband asked after my announcement. I thought for a moment and then replied, "No."

For some reason, I am not worried about this mammogram. Perhaps it's because I am monitored so regularly by the medical establishment and I'm confident anything suspicious in my breasts will be caught early and treated successfully. Perhaps the routine of it all makes mammograms not so eventful anymore. Maybe I'm just coping better with the seriousness of it all, and mammograms have become one more mundane appointment that requires my presence.

It doesn't matter really. What matters is that I am calm about my mammogram, that I am not giving it serious thought, that I am free of anxiety.

What matters is that I am not worried.

Cancer help delivered to mailbox, for free

Living Beyond Breast Cancer (LBBC) -- a nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life -- recently began offering a new resource for breast cancer survivors, for both the newly diagnosed and those with metastatic disease.

"The first few weeks after diagnosis can be extremely difficult emotionally, and women with advanced disease often do not get the support and resources they need," said Jean Sachs, LBBC executive director. "We want to give them an understanding of their choices to help them make informed decisions regarding their physical and emotional health."

This understanding comes in the form of a 28-page brochure -- What to expect . . . today, tomorrow and beyond: Steps for coping with the medical, emotional and practical concerns of breast cancer -- available free on the Internet or by request. This guide, a road map, addresses topics such as coping with the news of a new diagnosis, telling family and friends, understanding pathology reports, choosing a medical team, asking for help, and finding support.

LBBC offers multiple addidtional resources -- including specialized navigation tools on its website that lead to a wealth of information. Visitors can Learn More about LBBC. They can Stay Informed through news, message boards, and other resources. They can Participate in events and programs. And they can Support LBBC through volunteer efforts and financial donations.

LBBC was founded in 1991 by a radiation oncologist who focused exclusively on meeting the needs of women post-treatment. She ran the organization out of the third floor of her home using volunteers. Few resources existed for women affected by breast cancer at the time, and so she tried to fill the void. In 1986, an executive director came on board, increased the LBBC budget from $100,000 to $1.8 million per year, expanded all programs and services, and worked to secure LBBC as a solid, dependable resource for all women, of all stages of breast cancer and in all phases of treatment and recovery. And now, in 2006, that is exactly what it is.

Sunday Seven: Seven super searches to make at Wikipedia

I have made on-line visits to Wikipedia many times -- mostly for information on cancer. And what I've found are endless resources, thoroughly-covered topics, and material that is easy to read and easy to understand. Wikipedia, a free on-line encyclopedia -- where readers can participate in editing and changing content -- offers information on just about any topic you can imagine. And here are seven stops you might make in pursuit of cancer-related material.

Continue reading Sunday Seven: Seven super searches to make at Wikipedia

Breast cancer daughters tell their stories

Breast Cancer Daughters Tell Their Stories is a book that looks at how mothers and daughters change when facing breast cancer. The book addresses the daughters' experiences based on how old they were when their mothers died. It also has chapters on women whose mothers survived breast cancer and looks at genetic risk.

The author Dr. Oktay explains the process of interviewing women whose mothers had died and their reactions. This book is a good source for someone facing mortality issues. It examines four phases a daughter may experience. The period prior to a mother's illness, the period during the mother's illness and treatment, the period following a mothers death and long term impact.

Cancer Caregiver Bill of Rights: caring for mind body spirit

When Someone You Love Is Being Treated for Cancer is a book of tips and insight from caregivers for caregivers when it comes to the needs and issues of being a caregiver for a loved one diagnosed with cancer. Published online by The National Cancer Institute, the introduction states, "The purpose of this book is to focus on you and your needs."

In reviewing it, I found it to be a valuable and realistic resource for family members who find themselves in the role of caregiver because a loved one has been diagnosed with cancer.

Continue reading Cancer Caregiver Bill of Rights: caring for mind body spirit

Cancer caregiver becomes hero for wife, spreads his word

Caregivers are affected by cancer in their own unique and special ways. And those of us who have never been cancer caregivers and those of us who are patients receiving the care will never really know how it feels to walk in caregiver shoes -- until we do it ourselves.

Dr. Mitchell Luftig has done it himself. And after traveling a dark and unwanted journey of caring for his wife with breast cancer, he realized that he had learned a thing or two -- and he learned that he could share a thing or two. So he wrote a book, Be a Hero To The Woman You Love When She Gets Sick, and he speaks openly about his role as caregiver -- and his role at the time as father of twin high school daughters and husband of 20 years and clinical psychologist too. The whole ordeal turned his world upside down and he hopes that his story helps others -- primarily men -- who find themselves in a lonely place with the daunting job of caring for the people they love. As a psychologist, Luftig has good insight. And he wishes to help minimize the psychological barriers that prevent men from effectively caring for loved ones during times of serious illness.

Luftig shares in his book his realization that while he cannot repair and fix all hard times, he does have some important tools. And his power tools are love, support, and understanding. He has learned to sew joy out of rough cloth. He understands that he cannot shelter his family members from bad times, but he can shoulder their burden. And he now appreciates that all things are not so bad when measured against the yardstick of a life-threatening disease like cancer. Luftig's whole collection of wisdom and lessons and advice fill his book -- and bits and pieces also appear in periodic articles in Coping magazine. It's worth the read -- and the journey starts here.

Miriam Engelberg blogs cancer made me a shallower person

Over a month ago we introduced you to Miriam Engelberg, breast cancer survivor and author of Cancer Made Me a Shallower Person: A Memoir in Comics. Years before she was diagnosed with cancer, she had planned on creating comics featuring life as a mother.

Instead, she used cartooning as a way to cope with the shock of diagnosis, surgery, chemotherapy, support groups, and a second cancer diagnosis. Today I discovered her blogging at Live Journal about her current cancer treatments, adventures in the world of being a published author and every day life as Miriam Engelberg.

In addition, at her Miriam Engelberg website, she features a weekly cartoon. Engelberg is simply delightful and deliciously funny. You'll enjoy the blog and the featured weekly cartoon.  

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