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Posts with tag diagnosed

Sunday Seven: Seven messages for the newly diagnosed

My mom's friend was diagnosed with breast cancer the other day. Since I've already been down the breast cancer path, she asked me to send this friend a supportive e-mail. I've done this before -- reach out to someone newly diagnosed -- but it's never easy. I never know quite what to say. Somehow, I figure it out, though.

Here are seven of the messages I shared with this woman who is just beginning her journey with Paget's disease of the breast, a form of breast cancer that shows up in the nipple as an itchiness or scaling that doesn't get better.
  • In the face of uncertainty, worry, and fear, here's some good news: once you gain more and more information about your diagnosis, the easier it gets. The waiting really is the hardest part. Knowing what lies ahead will give you some control over your path.

Continue reading Sunday Seven: Seven messages for the newly diagnosed

Young Survival Coalition: Some stats on young women with breast cancer

I usually check the Young Survival Coalition message boards everyday. Even though I am five years out from my cancer diagnosis, this is a place I love to go to for support and also to help other young women who are newly diagnosed.

I hope that I can be helpful in some way, maybe by answering questions or just telling the girls that I did have a positive lymph node and I'm still here with no recurrence at this time. I know that when I was first diagnosed, one of the important things to me was finding someone with the same diagnosis that was years out from chemotherapy and doing fine.

There was a poll that was done by one of the board members. I found it to be interesting. The question put out to the women on the YSC message board was -- How old were you when diagnosed with breast cancer?

Continue reading Young Survival Coalition: Some stats on young women with breast cancer

Cancer questions

If you have just been diagnosed or are ready to go through treatments it is important that you understand your disease and the therapies recommended. A great website, www.webmed.com has a list of questions that you should bring along to your next appointment.

Remember -- Knowledge is power!

10 Cancer Questions for Your Medical Oncologist About Chemotherapy, Hormone Therapy, or Immunotherapy

  1. Why are you recommending this treatment for me? Why is it preferable to others?
  2. What does this treatment do, exactly? How well does it usually work?
  3. What are the risks and side effects of this treatment?
  4. How long will I need this treatment?
  5. Where will I go to get this treatment?
  6. What should I expect from the treatment itself? How long will it take?
  7. Should I bring a friend or family member with me to treatment?
  8. After treatment, will I need time to recover? Will I be able to drive myself home? Will I need to miss work?
  9. Should I make any changes to my diet or lifestyle during or after treatment?
  10. How can I reach you if I have concerns or further questions?

10 Cancer Questions for Your Surgeon or Surgical Oncologist

  1. Why are you recommending this surgery for me? Why is this treatment preferable to others?
  2. What will this surgery accomplish, exactly? How well does it usually work?
  3. What are the risks of this operation?
  4. How should I prepare for this surgery?
  5. What will happen during the procedure?
  6. How long will I need to stay in the hospital?
  7. What will my recovery be like?
  8. What complications should I look for?
  9. When can I go back to work?
  10. How can I reach you if I have concerns or further questions?

10 Cancer Questions to Ask the Radiation Oncologist

  1. Why are you recommending this treatment for me? Why is it preferable to others?
  2. What does this radiation therapy do, exactly? How well does it usually work?
  3. What are the risks and side effects of radiation therapy?
  4. How many weeks will I need this treatment?
  5. Where will I go to get this treatment?
  6. What should I expect from the treatment itself? What will happen? How long will it last?
  7. Should I bring a friend or family member with me to treatment?
  8. After treatment, will I need time to recover? Will I need to miss work?
  9. Should I make any changes to my diet or lifestyle during or after treatment?
  10. How can I reach you if I have concerns or further questions?

Congresswoman Millender-McDonald diagnosed with cancer

California Democratic Rep. Juanita Millender-McDonald has been diagnosed with cancer and will take a four to six-week leave of absence from the House.

Details about the congresswoman's condition have not been revealed but a statement from her office reports, "The congresswoman has been diagnosed with cancer and is recuperating with her family. The congresswoman wishes to thank everyone for their expressions of love, well wishes and prayers. She will maintain a limited schedule in her district and is requesting respect of her privacy at this time."

Millender-McDonald, 68, has been representing for seven terms a Southern California district that includes Compton, Long Beach, and parts of Los Angeles. She is also chair of the Committee on House Administration and oversees House operations and federal election procedures.

Resource for helping those close to you diagnosed with cancer

While reading the spring issue of Cure Magazine I came across an article on a book called Help Me Live: 20 Things People with Cancer Want You to Know.

I have not read the book but I think it would be a great resource for those who have a family or friend with cancer. There is a need for a guide --I think this book can fill that gap.

Why would a guide be needed? I have found throughout my cancer journey that fellow survivors have many stories of unthoughtful, tasteless, ridiculous and sometimes funny comments from those around them. We can laugh at a lot of the comments because we know the person means well -- but sometimes it does go too far and can hurt.

What this book does is give the friend or family member some insight on what would be most helpful to the cancer patient. Based on the author's own experience with the disease and other survivors, each chapter tells intimate stories about one of the 20 most important messages people with cancer want to convey.

Help Me Live will help you find the word or gestures to show how much you care. There is never a 'right thing' to say or do but learning how to communicate effectively is very important.

This book can also be helpful to the cancer survivors themselves says Kathy Latour who wrote the article in Cure Magazine. She says "This book is not just for its intended audience of friends and caregivers, but for cancer patients too. In part, it affirms the cutting edge comments we made when Uncle Jack said something tasteless and painful. But in addition to reminding me of the many challenging people in my journey, the stories also revealed ways I could have handled them a little better"

Anti-HIV drug use in pregnancy increases cancer risk

Antiretroviral drugs, used to prevent HIV transmission from mother to child, are now believed to cause genetic damage in infants. This damage, leading to an increased risk of developing cancer, makes it highly plausible these children may be diagnosed with the disease in mid and late adulthood.

Two new studies indicate there are cancer-causing effects of transplacental exposure to AZT, an antiretroviral drug. These effects -- like increased incidence of tumors and tumors with genetic changes -- have been demonstrated in mice and rats and seem to be cause for concern in humans too.

"The cumulative mutagenesis data suggest that infants exposed transplacentally to AZT may be at increased risk for cancer as they age," said one researcher, whose findings are published in Environment and Molecular Mutagenesis.

John Edwards holds press conference about wife's health

Democratic presidential candidate and former North Carolina senator John Edwards missed an Iowa campaign event on Tuesday so he could be with his wife as she prepared for a medical appointment the following morning.

Elizabeth Edwards, diagnosed with breast cancer just before the 2004 election, when her husband ran for vice president, has survived chemotherapy, surgery, and radiation and has written a book -- Saving Graces -- about her entire journey.

Edwards' campaign crew has insisted Wednesday's appointment was a routine follow-up to a medical visit his wife had the day before and that Elizabeth Edwards, 57, has been living cancer-free.

Today at noon, Edwards will hold a press conference about his wife's health and how it may -- or may not -- affect his candidacy.

Thought for the Day: Young women get breast cancer

OK, we all know young women get breast cancer. But the way some talk about the pair -- young women and the deadly disease -- it would seem finding a young one living with this type of cancer is like locating that needle in a haystack. Many a young woman -- like me -- have heard doctors and nurses and technicians and family and friends remark, "you are too young for the disease," and then dismiss cancer suspicions as needless worry.

The median age for women diagnosed with breast cancer is 65. But think about this fact, published in the Spring/Summer edition of Beyond: Live & Thrive After Breast Cancer.

More than 240,000 women in the United States age 40 and under are living with breast cancer. Each year in this country, more than 14,000 women 40 years old and younger are diagnosed with breast cancer, says Boston oncologist Ann Partridge, M.D., of the Dana-Farber Cancer Institute.

That's a lot of young women. That's a lot of breast cancer. And yet, mammograms still are not recommended for women under the age of 40.

Survivor Spotlight: Alese Coco is fighting 2 win

Alese was diagnosed with Hodgkin's disease when she was seventeen years old. This was back in November of 2001 and Alese has been fighting this disease on and off since that time.

After her initial treatment of the standard chemotherapy regimen for Hodgkin's, Alese had her first recurrence after only four months. Alese then received a stem cell transplant in December of 2002 and she was cancer free for two years. On November 18, 2004 it was found that Alese had another recurrence of Hodgkin's.

I have been reading Alese's journal on her blog called Alese Coco Fight 2 Win. She is a courageous young women. You can read her story here, it is very inspirational.

It has been a scary weekend since Alese's family were told that they might have to start making 'end of life' decisions. Alese was having many complications from her disease that it was threatening to take her life. Thankfully, it seems things are looking better this morning. Check out her journal and if you like leave an encouraging message!

Sunday Seven: Seven ways to help

My friend -- who has a friend newly diagnosed with brain cancer -- greeted me at the door the other day and asked with a sense of urgency, "How can I help?"

"Help your friend?" I asked.

"Yes, she said, unsure of what she might say or do in this time of great difficulty for everyone involved.

I told her a few things. And then I thought of some more. It wasn't terribly easy to come up with these ideas. Because even though I myself was on the receiving end of help during my cancer journey, it's still hard to imagine what an individual wants or needs -- or doesn't want or need. But here's what I've got to offer.

I hope this helps my friend.

I hope it helps you too.
  • Allow your loved one to take the lead. If you sense this person wants to talk, then talk. If you sense talk is not welcomed, then don't talk. To determine whether or not your friend or family member wants to discuss cancer, approach the topic and judge the response you get. I know I can usually tell if someone is willing to open up -- typically the conversation just flows -- and when someone is putting the brakes on chit-chat -- typically the conversation falls flat.
  • If talk is not in the cards, then consider an offer of food. Sometimes actions speak much louder than words. So think about calling a restaurant in your friend's town and ordering a meal to be delivered right to the door. Most eating establishments accept credit card numbers over the phone so location should be a non-issue. Even those deep in despair need to eat, and taking away the chore of cooking and cleaning up can be quite a gift.
  • If the gift of food is not up your alley, how about sending a small gift, like a candle, a pair of cozy socks, a grocery store gift card, a music CD, a gift certificate for a spa. You name it, your special something might brighten the day.
  • If you live near your loved one and have some free time, offer to drive to appointments, visit during treatments, pick up kids and entertain them for the day, clean house, cook, and clean up dinner. Try to be very specific with your offers. Say, "I'd like to pick up your kids tomorrow at lunch so you can take a nap" or "I'm coming over on Sunday to rake leaves." These offers are easier to accept than the "call me if you need anything" kind.
  • If a quick stop at your loved one's house is possible, drop off a book on the front porch or set some pretty potted flowers by the door. Or do both. Then walk away without saying a word. Let your help take your friend by surprise.
  • When you do have the chance to talk, avoid guiding the conversation with your own thoughts and advice, unless requested. Saying, "Everything will be OK," for example, may not be true. Assuring your friend she will sail right through chemotherapy may backfire if nausea and fatigue are just down the road. Stating, "it's OK, your hair will grow back," doesn't really help those living with the horror of hair loss. So stay away from promises and predictions and stick to the present. Ask questions, listen, and paraphrase back what your friend has shared. These are basic counseling techniques. The premise is that allowing the person to work through the issues is more important than what we can do to directly help.
  • Don't forget about the good old greeting card or short note that lets your loved know how much you care. Let the card say it if you wish to avoid writing and then add an address, a stamp, and send your support on its way.
  • This makes eight -- so much for sticking to my Sunday plan -- but I must share this too: Don't forget about your loved one after months and even years pass by. Initial diagnoses are tough and treatments are tough too. But as your friend survives each day, remember to check in. Cancer is a life-long battle for many. Support and assistance may be just as valuable a year down the road as it is on day one.

Life without cancer never a guarantee

A friend of a friend was diagnosed this week with a cancerous brain tumor -- a glioma to be exact -- and the surgery to remove the mass is scheduled for Monday.

I don't know much about this woman or her cancer, but I do know doctors told her yesterday she will likely survive for only a few years. I can't help but think that if doctors had given me this same prediction at the time of my cancer diagnosis, my time would just about be up.

I can't fully grasp the magnitude of this sad and sobering news. But I can comprehend that any one of us could be on the receiving end of such an announcement at any given moment. We are all vulnerable. And so I am confronted once again with the powerful and painful reminder that each day really could be my last.

Discovery of cell pathway may help colon cancer patients

One in 18 men and women will be diagnosed with colorectal cancer during their lifetimes -- that translates into more than 150,000 people diagnosed and more than 52,000 colorectal cancer deaths each year, securing the disease as the second leading cause of cancer death in the United States.

Fortunately, mortality rates for this disease have been declining due to earlier screenings, awareness of symptoms, removal of polyps, and improved treatments through advances in research discoveries -- like today's genetic breakthroughs.

In a recent study, researchers identified a cell pathway critical in the development of colon cancer and also lung and stomach cancers.

STAT3 (signal transducer and activator of transcription 3) is the newest discovery and is a target regulated by PRPRT (receptor protein tyrosine phosphatase T), already identified to be mutated in these cancers.

"The role of protein tyrosine phosphatase in cancer is still an under-explored area," says Zhenghe John Wang, Ph.D., Assistant Professor, Department of Genetics at Case Western Reserve University School of Medicine and Case Comprehensive Cancer Center.

"Our study shows that receptor protein tyrosine phosphatase T regulates an important signaling pathway that is critical in cancer development. This identification will allow new approaches to pharmacological designs and facilitate alternative approaches for cancer treatment."

This study, published in the Proceedings of the National Academy of Sciences (PNAS Online Edition Feb. 20-23, 2007), provides new hope for the development of drugs that will target this potentially deadly disease.

Beginning to reach to recovery

I'm just waiting for the call -- the call that prompts my first visit with any number of newly-diagnosed breast cancer patients who want someone to lend an ear, a shoulder, and a few good tips for steering through a scary journey.

I am a new American Cancer Society Reach to Recovery volunteer, trained this past Saturday and ready to help others who are slipping into the shoes I started wearing two years ago. I was first a recipient of this program -- designed to match new breast cancer patients with veteran survivors through face-to-face visits -- and I know well the comfort that comes from the support of someone not so overwhelmed by cancer. So now it's my turn to offer the comfort. And I am oh so ready.

I am armed with literature, communication techniques, gift bags for my patients, and my own official volunteer pin. And while I am a bit anxious about how my first meeting will go, I learned on Saturday that my mere presence will be enough to calm the women whose lives I am about to touch.

There is no better vision for someone just diagnosed with breast cancer than a healthy, happy woman who happens to be surviving the same disease. And so it is hope that I will spread and my unspoken portrayal of life after cancer that will inspire these women. My words will be icing on the cake. It's me these women want to see. And it's these women I want to see as I begin to reach to recovery -- a recovery I suspect will largely be my own.

Secondhand smoke to blame for many lung cancer cases

Nearly 20 percent of women and eight percent of men with lung cancer have never smoked, say researchers involved in a study of one million people in the United States and Sweden. The likely culprit in these lung cancer cases is secondhand smoke.

It's not yet clear why women are more likely to develop the disease. Perhaps they are more susceptible to all forms of smoking -- whether direct or secondhand -- or maybe because more men smoke than women, women are more likely to be exposed to secondhand smoke.

While smoking is the leading cause of lung cancer, there are other factors to blame for disease incidence. Radon, asbestos, chromium, and arsenic are all associated with lung cancer.

According to the American Cancer Society, lung cancer will be diagnosed in 213,000 Americans in 2007. The disease will kill 160,000.

Cancer death rates higher in African-Americans

It's been reported before and sadly, it's still true -- African-American cancer death rates are higher than for the overall population.

A new report from the American Cancer Society reveals the death rate is 35 percent higher in African-American men and 18 percent higher in African-American women. Lung cancer is the most common cause of cancer death among this population.

While the cancer plight of this group is improving, African-Americans are still more likely to be diagnosed at later stages of the disease. And late diagnosis often translates into a decreased chance for survival.

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