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My Life Line website: connect. inspire. heal.

Marcia, the creator of MyLifeLine, has a dream: To make a difference in the lives of cancer patients and their families. A cancer survivor herself, she understands what it means to be diagnosed, undergo treatments -- and still be present and available to the questions of concerned family members and friends.

At age 27, Marcia was diagnosed with stage III ovarian cancer. To say it was unexpected is an understatement of vast proportions! At the time of the diagnosis, she was living in Chicago and working as a flight attendant for American Airlines. She went from flying the friendly skies to a complete hysterectomy, followed by 6 months of chemotherapy. One clear memory is the spiritual support she received from family and friends. "For that I am eternally grateful," she says.

MyLifeLine.org is a nonprofit organization that encourages cancer patients and survivors to create free, customized websites. Their mission is to empower patients to build an online support community of family and friends to foster connection, inspiration, and healing.

Thought for the Day: All the ways we say 'I Love You'

If there's one thing that I've learned about cancer, it's this: Life is too fragile to worry about the things we usually spend all our energy on, like deadlines, traffic, working late, making money and so on. Cancer isn't always a death sentence but it should always be a wake-up call. Whether it happens to you or someone close to you, it should always remind you of what's really important.

When my dad passed away, I went through the anger stage of grief being angry at him because although he knew he was dying and I didn't, he never once told me he loved me, even though we had about a dozen conversations during that time. I took grief counseling shortly after and my counselor said something simple but profound and definitely thought-provoking: sometimes the way we say I love you isn't through words.

Continue reading Thought for the Day: All the ways we say 'I Love You'

Thought for the Day: Young women get breast cancer

OK, we all know young women get breast cancer. But the way some talk about the pair -- young women and the deadly disease -- it would seem finding a young one living with this type of cancer is like locating that needle in a haystack. Many a young woman -- like me -- have heard doctors and nurses and technicians and family and friends remark, "you are too young for the disease," and then dismiss cancer suspicions as needless worry.

The median age for women diagnosed with breast cancer is 65. But think about this fact, published in the Spring/Summer edition of Beyond: Live & Thrive After Breast Cancer.

More than 240,000 women in the United States age 40 and under are living with breast cancer. Each year in this country, more than 14,000 women 40 years old and younger are diagnosed with breast cancer, says Boston oncologist Ann Partridge, M.D., of the Dana-Farber Cancer Institute.

That's a lot of young women. That's a lot of breast cancer. And yet, mammograms still are not recommended for women under the age of 40.

Life without cancer never a guarantee

A friend of a friend was diagnosed this week with a cancerous brain tumor -- a glioma to be exact -- and the surgery to remove the mass is scheduled for Monday.

I don't know much about this woman or her cancer, but I do know doctors told her yesterday she will likely survive for only a few years. I can't help but think that if doctors had given me this same prediction at the time of my cancer diagnosis, my time would just about be up.

I can't fully grasp the magnitude of this sad and sobering news. But I can comprehend that any one of us could be on the receiving end of such an announcement at any given moment. We are all vulnerable. And so I am confronted once again with the powerful and painful reminder that each day really could be my last.

Marcia Cross chosen as Olay skin cancer prevention partner

Skin cancer awareness month doesn't arrive until May, but Olay and the American Society for Dermatologic Surgery have already chosen their spokesperson for the 2007 Skin Cancer Takes Friends campaign.

Emmy-nominated Desperate Housewives actress Marcia Cross will kick off a nationwide free skin cancer screening and education initiative to alert Americans about the importance of early detection and prevention in the fight against a disease that has affected her personally.

"I'm proud to be part of a cause that is near and dear to my heart," says Cross. "Having had two family members suffer from melanoma, I've come to understand the importance of skin cancer detection and prevention. Knowing what I know about the dangers of sun exposure, I take extra care to protect myself with a large hat, sunglasses, daily UV protection, and of course, an annual screening."

Cross has become an partner in the crusade against skin cancer so she can encourage people to protect not only themselves but their family members and friends too.

Beginning on April 1, log onto skincancertakesfriends.org to find a dermatologist offering free screenings in your area. Take a friend with you to your screening during the months of May, June, and July and each of you will pay not a penny.

Many people don't know just how dangerous skin cancer can be. Yet it's the most common form of cancer in the United States and the incidence of melanoma -- the deadliest form of the disease -- is rising faster than any other cancer. Right now, one in five Americans will develop skin cancer during their lifetimes. And every 67 minutes, someone dies of melanoma.

Screening is a must for everyone -- regardless of skin color, ethnicity, age, or geography. So mark your calendar for April 1 if you'd like a free screening. If money is not an issue, make an appointment today.

Survivor Spotlight: Two little boys sound off on 2006

Those of us diagnosed with cancer are not the only survivors of our diseases. Our families and friends and caregivers and even employers and co-workers survive right along with us. Sure, the facets of our survivorship vary tremendously -- but we all survive the wrath of cancer in our own unique ways.

My two little boys have spent the past two years surviving breast cancer -- my breast cancer. And while they still don't fully comprehend the magnitude of such a disease, they do understand cancer is a sickness. They understand it took my hair, made me feel sick, left me with scars, and they religiously comment on every pink ribbon they see. They call the ribbons cancer.

I am often asked how my children handled my diagnosis, my treatment, my emotions. They handled it all well, I think, and as time passes, they do better and better. In fact, cancer seems to have vanished into thin air for Joey, who will turn six on Wednesday, and Danny, who is three and a half years old. I know this because of their answers to a few questions I asked them last night, on the eve of 2007.

What was the best thing you did this year?

Joey: Swimming in the pool.
Danny: Being at school.

What was the worst thing that happened this year?


Joey: Getting that boo-boo on my foot, when it scraped on the driveway.
Danny: The cheetah that was chasing me.

What could you have done better this year?


Joey: Learning to ride my bike without training wheels.
Danny: Watching Ice Age.

What would you like to work on during this new year?


Joey: Building a better stick house.
Danny: Drinking milk.

What was the scariest thing that happened this year?

Joey: When I thought there were monsters in my room.
Danny: When there was a cheetah in my room.

What was the funniest thing that happened to you this year?

Joey: When Jack (uncle) and Bud (grandpa) tickled me.
Danny: When the cheetah was chasing me.

When I say the word Daddy, what do you think about?

Joey: Someone who makes me laugh.
Danny: no reply -- he was distracted by the movie Ice Age.

When I say the word Mommy, what do you think about?

Joey: I don't know.
Danny: no reply -- still distracted by the movie Ice Age.

What do you wish for 2007?

Joey: I wish I could fly.
Danny: I wish I could slide on a sleigh.

And that's a wrap. Not one mention of cancer. Not one response concerning endless medical appointments, my drastically different hair, or the port -- they called it a stone -- that was removed from my body in September.

There truly are more important things in life than cancer for two little boys whose memories of a horrible disease will hopefully fade with each passing year -- until not even a pink ribbon catches their attention.

Happy 2007, Joey and Danny. May all your wishes come true!

Pajama pick-me-up provided for sick kids

Sarita Zouvas knows what it's like to have a child in the hospital. Her daughter, Isabella -- who died while receiving treatment for cancer -- spent many days in the hospital, and Zouvas says it's hard to anticipate what items from home will make a child's stay more comfortable.

"We don't go prepared," she says. "You don't take clothes; you don't know what's going on. You get there and they put a gown on them. My first response is, 'I want to make them comfortable because they're scared.'"

Zouvas has found a way to bring comfort to the lives of children at her local Children's Hospital. And her goal is to make sure every child admitted to the hospital during the holiday season gets a complimentary pair of pajamas.

After the death of her daughter, Zouvas became involved with the Friends of Scott Foundation (FSF) -- a non-profit organization founded in memory of Scott Delgadillo who lost his life to childhood cancer. FSF strives to help children with cancer and their families with emotional and financial support in order to cope with this devastating disease. Zouvas became a part of the FSF support team and is thrilled she can help bring comfy jammies to sick children.

Zouvas says the response to her call for help has been overwhelming. Most pajamas are donated and have come from as far away as Boston. Employees of the San Diego Padres, Southwest Airlines, and the district attorney's office have also helped Zouvas in the endeavor she hopes will continue year-round.

For more information on the Friends of Scott Foundation and Zouvas' pajama drive, click here.

Sunday Seven: Seven reasons for giving thanks this season

I am thankful. Plain and simple. I am thankful -- for these seven reasons.

One. Joey and Danny. The little boys who tore out of my body at a combined almost 21 pounds and have been tearing through life with the same screaming spirit they exhibited the very moments they entered the world. I didn't know it at the time, but these boys were delivered just in time -- for they became the angels who guided me through breast cancer. I can't even consider how I would have survived without them.

Two. Each and every member of my family who has supported me, loved me, motivated me, and comforted me during all phases of my life. The same people who really stepped to the plate when the breast cancer deck was stacked against me and I was faced with losing my life.

Three. The millions of breast cancer survivors who came before me. The women who fought, conquered, lost -- and paved the way for my own survival.

Four.
My hair. It's brown. It's curly. It's nothing like the blond, straight hair I loved for 34 years -- before it was stolen by chemotherapy. But it's hair. And it's mine. And it sure beats having no hair at all.

Five. Writing. I entered college as a journalism major and somehow pursued entirely different interests. Eighteen years later, I am back to writing -- thanks to the material cancer gave me.

Six. Connections. I have collected a whole circle of friends whose faces I have never seen. Yet our shared experiences with cancer and other life-changing events have made us fast friends. Our bonds are deep, meaningful, and nothing like I've ever known.

Seven. My health. The love of my husband. My niece and borrowed little girl. Reminders of my late grandmother. Loving co-workers. The roof over my head. The food on my table. And so much more.
I am thankful. Plain and simple. I am thankful.

Cancer help delivered to mailbox, for free

Living Beyond Breast Cancer (LBBC) -- a nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life -- recently began offering a new resource for breast cancer survivors, for both the newly diagnosed and those with metastatic disease.

"The first few weeks after diagnosis can be extremely difficult emotionally, and women with advanced disease often do not get the support and resources they need," said Jean Sachs, LBBC executive director. "We want to give them an understanding of their choices to help them make informed decisions regarding their physical and emotional health."

This understanding comes in the form of a 28-page brochure -- What to expect . . . today, tomorrow and beyond: Steps for coping with the medical, emotional and practical concerns of breast cancer -- available free on the Internet or by request. This guide, a road map, addresses topics such as coping with the news of a new diagnosis, telling family and friends, understanding pathology reports, choosing a medical team, asking for help, and finding support.

LBBC offers multiple addidtional resources -- including specialized navigation tools on its website that lead to a wealth of information. Visitors can Learn More about LBBC. They can Stay Informed through news, message boards, and other resources. They can Participate in events and programs. And they can Support LBBC through volunteer efforts and financial donations.

LBBC was founded in 1991 by a radiation oncologist who focused exclusively on meeting the needs of women post-treatment. She ran the organization out of the third floor of her home using volunteers. Few resources existed for women affected by breast cancer at the time, and so she tried to fill the void. In 1986, an executive director came on board, increased the LBBC budget from $100,000 to $1.8 million per year, expanded all programs and services, and worked to secure LBBC as a solid, dependable resource for all women, of all stages of breast cancer and in all phases of treatment and recovery. And now, in 2006, that is exactly what it is.

Breast cancer: An Easier Recovery

An Easier Recovery is a company that was founded by Catherine E. McGrath. Catherine created three products that can help make a woman's journey through breast cancer treatment a little bit easier. Being a breast cancer survivor herself and going through surgery, chemotherapy and radiation, Catherine saw a need.

One of the products that Catherine designed is called The Jackie. Unlike the Johnnies we are familiar with, The Jackie is specifically designed for women going through the breast cancer treatment and recovery process. It's features include being very warm and cozy, having specially designed pockets for holding the drains and the Velcro buttons on the sleeve gives easy arm access for taking blood pressure or blood samples.

Another great idea is the Been There Bag. This bag is a great gift if you know someone who has been diagnosed with breast cancer. It is filled with things that a woman might need while going through chemotherapy. Some items include special mouth wash, lotions, tee oil and lip balm.

The final of the three items you can find on the website can help you keep your cancer paperwork organized. We all know how much of it can accumulate. Its always a great idea to keep all your information together in one place. Insurance paperwork, disability and Medicare forms, pharmacy and medicine information, doctor reports and also bills and receipts.

I know for sure that dangling drains are painful! I had to come up with my own creative ideas when I was diagnosed. Its nice to see someone addressing these special issues.

Perspective on death changes, compliments of cancer

I remember thinking when my grandma was a spunky 80-year-old -- still going to aerobics classes in her purple tights -- that it must be sad to be such an age when so many friends and acquaintances are falling ill and passing away. My grandma was always one to care for others, call on others, pray for others -- and often she seemed to be the only one in her circle who was thriving. Somehow, she took it all in stride and continued baking and gardening and sewing and living strong until her own death at the age of 86 -- when she left her remaining friends and acquaintances wondering if their own time on Earth was approaching a quick end. At the time, I thought this loss of friends was merely a side effect of aging. It didn't seem to concern me at my own young age of 30. I didn't really know any 30-year-olds who were dying. And I didn't predict anyone my age would be dying until I was closer to the age of 80. How wrong I was.

I am now 36 years old. And I know many women my age who have died -- most of them because of breast cancer, the same disease I have been fighting for nearly two years. So it's not only sad to me that people my age are dying, it's also quite personal and frightening -- for it could easily me in the same predicament. So I feel vulnerable -- so many years earlier than I imagined.

I think I know how my grandma must have felt when her loved ones were leaving her. And I think I will take her same approach to coping with this unfortunate fact of life. Although I couldn't possibly bake and garden and sew like she did, I can keep busy with my own hobbies and interests. And I can continue living strong until my own death -- which hopefully won't occur until after I've made my appearance in purple tights. About 50 years from now.

Survivor Spotlight: Jennifer Matherly inspires with grace

Jennifer Matherly is a 27-year-old wife, mother, daughter, sister, insurance broker, student, and friend. She is also a breast cancer survivor. Jennifer, who lives in Columbus, Ohio, enjoys golfing, watching football, and spending time with friends and family. She doesn't have much free time lately -- but when she finds moments all to herself, she tends to her hobbies which include cross-stitching and working on her blog.

Jennifer's blog began as a story about her journey to motherhood. It turned into a story about her journey with breast cancer. It's an inspiring read, full of trials and triumphs. It's a testament to her strength and courage and sheer determination. It's a story of survivorship -- a little something like what follows.

Continue reading Survivor Spotlight: Jennifer Matherly inspires with grace

Survivor Spotlight: Life takes a new direction after breast cancer diagnosis

Deb is a special friend of mine, or as Deb would say we are bosom buddies. We first met online on the Young Survival Coalition (YSC) message boards and then face to face at the YSC conference. We were diagnosed with breast cancer within days of one another. Deb has two sons, Max who is six and Ben who is eight. She is working towards her Masters in public health and is heavily involved with breast cancer advocacy and support programs.

Continue reading Survivor Spotlight: Life takes a new direction after breast cancer diagnosis

Cate Blanchett to play Cancer Vixen Marisa Acocella Marchetto

Cate Blanchett is set to star as Marisa Acocella Marchetto in Cancer Vixen: A True Story, the cartoonist fashionista for Glamour and the New Yorker who discovered, while planning her wedding to celebrity restaurateur Silvano Marchetto, that she had breast cancer. Marchetto also realized she had let her health insurance lapse right before being diagnosed with cancer.

With stylish aplomb, she has become phenomenally popular for her colorful personality, and the telling of her breast cancer diagnosis, treatment and survivorship with a sense of humor and fashion flair that included wearing her favorite high heels to chemotherapy and noting that her hospital gown reminded her of Diane von Furstenberg designs.

Amazon features an exclusive cartoon on the Cancer Vixen: A True Story book page and portrays Marchetto as a "self-described shoe-crazy, lipstick-obsessed, wine-swilling, pasta-slurping, fashion-fanatic, single-forever, about-to-get-married big-city girl cartoonist with a fabulous life." Blanchett is reportedly in talks to produce the film as well, with her husband, Andrew Upton, through their company Dirty Films.

One of our bloggers and breast cancer survivor Jacki Donaldson, in a previous post featuring Marisa Acocella Marchetto, recommends Cancer Vixen: A True Story as a "must read." For all women facing breast cancer, I agree. Never underestimate the positive benefit of a spunky attitude -- sense of humor -- and a really sexy pair of high heels when it comes to facing the struggles with breast cancer.

Warriors in Pink: enter to win new car help create virtual quilt

Grey's Anatomy has teamed up with Warriors in Pink in a sweepstakes called Gear Up with Grey's Anatomy. The Warriors in Pink Prize Package winner will receive a 2007 Ford Fusion, a trip to the Grey's Anatomy set, and a Warrior in Pink apparel package including gear autographed by the cast of Grey's Anatomy. No purchase is necessary to win and the deadline to enter the sweepstakes is 11:59 PM (EST) on December 31, 2006. For more details, and to enter the sweepstakes, visit Warriors in Pink Gear Up with Grey's Anatomy Sweepstakes.

In addition, Warriors in Pink has launched a magnificent virtual quilt online. Breast cancer survivors and co-survivors are invited to contribute to the quilt with a personal message of encouragement, inspiration, love, support and celebration by designing a symbolic patch that will then be added to the Virtual Quilt online. According to the keepers of the Warriors in Pink Virtual Quilt, "There is strength in numbers, and decorated with the Warriors in Pink symbols, each patch is a personal message for friends and loved ones. Experience the vastness and behold the Warriors in Pink beautiful and valiant fight against breast cancer."

The Virtual Quilt is also available as a screensaver. To date, there are 2740 patches. To visit, the Virtual Quilt requires Flash Player 8 or higher.

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