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Posts with tag networking

Let's talk about sex: Reclaiming intimacy after breast cancer

This networking event called Let's Talk About Sex: Reclaiming Intimacy After Breast Cancer will focus on sexuality and intimacy after a breast cancer diagnosis.

Join Living Beyond Breast Cancer (LBBC) on Wednesday, May 30, 2007, from 6:00 p.m. to 8:30 p.m. at the Philadelphia Marriott West in West Conschohocken, PA.

Featured speaker Kara Nakisbendi, MD will provide a candid and caring discussion about intimacy after a breast cancer diagnosis and how to reclaim sexuality to improve quality of life.

Continue reading Let's talk about sex: Reclaiming intimacy after breast cancer

Thought for the Day: I'm too young for this

There's this guy. His name is Matthew Zachary. He's a cancer survivor, a motivational speaker, a concert pianist, and the founder of a resource portal for young adults surviving cancer.

Steps for Living, Inc. -- also known as I'm too young for this -- was created by Zachary because he wants us all to know there are awesome cancer support services out there for adolescents and young adults. He means really awesome opportunities -- like spa retreats, online forums and blogs, social networking, camping excursions, fertility education, peer counseling, financial scholarships, and more.

You may be too young for cancer, but you are not alone, says Zachary whose mantra is Get Busy Living. And this is exactly what he is doing, despite challenges and setbacks in his own cancer recovery.

Think about this, an e-mail written by Zachary for those near and dear to his heart:

I am writing to share that I have suddenly gone deaf in my left ear. The condition is called Sudden Sensory Neural Hearing Loss.

After consulting with the country's best hearing experts as well as my oncologist, it has been determined that this is unequivocally a latent, long-term side effect of my post-operative cancer treatments from eleven years ago. Evidently, the excessive radiation dosages to the left hemisphere of my brain have caused irreparable neurological damage to my cochlea, which has ceased functioning.

There may be options (cochlear implants) but I will not know more for several weeks. As you can imagine, this is a devastating blow to my personal life and music career, especially since I remember fighting so hard to regain dexterity and muscle control in my left hand when it ceased functioning prior to my initial diagnosis in 1995.

That said, it has only reinvigorated me to stay the course and continue to advocate on behalf of the more than 500,000 young adults living with, through and beyond cancer each and every year. Now more than ever, I stress the importance of recognizing that remission is not a cure and that public awareness and adequate funding for adolescent and young adult cancer survivorship programming is tantamount to that of cancer research.

This is what it means to be a cancer survivor.

To read more about Zachary's powerful journey, click here for an unbelievably moving essay -- titled The Cost Of Living: No Cure For Cancer -- written by this unbelievably grounded guy.

Writing can promote healing after cancer

When you are diagnosed with cancer you may experience an array of different emotions --fear, anxiety, depression, anger, worry and many others. Some cancer patients or survivors may feel alone or unable to talk to friends or family members about how they are really feeling.

Research has suggested that writing can help with the healing process after cancer. Living Beyond Breast Cancer (LBBC) is hosting a networking meeting for women affected by breast cancer called Healing with words: Writing the Breast Cancer Experience.

Alysa Cummings, MLS, CPT, of Pink Ribbon Poetry, will explain how women affected by breast cancer can use writing to heal. Attendees will hear a presentation by members of Pink Ribbon Poetry. Following the presentation, attendees can choose to share in a poetry therapy group and learn about online resources for writing their stories.

The networking meeting will be held on April 26, 2007, from 6:00 p.m. to 8:00 p.m. at the Cherry Hill Library in Cherry Hill, New Jersey. A light dinner and refreshments will be available after the networking event. To register for this free event, visit LBBC's website or call the office at 610-645-4567.

It does not matter what kind of cancer you have been diagnosed with, this therapy can work for anyone, you can take advantage of writing in a journal in your own home. It can help heal your mind on so many levels. Try it out. You will be pleasantly surprised at the release it can give you.

Paris Hilton, Bebo and cancer top Google searches

Who and what was the most googled in 2006? The Year-End Google Zeitgeist top ten lists for general and news searches on the Internet this year include Paris Hilton and Bebo -- and cancer.

Of the celebrities most searched for, Paris Hilton outranked Orlando Bloom and the social networking site Bebo outranked MySpace. In the news category, cancer ranked as the third most searched for topic, before podcasting, autism, Hurricane Katrina, and bankruptcy.

The top ten Google searches were, in this order: Bebo, MySpace, World Cup, Metacafe, Radioblog, Wikipedia, Video, Rebelde, Mininova and Wiki. The top ten Google news searches were, in this order: Paris Hilton, Orlando Bloom, cancer, podcasting, Hurricane Katrina, bankruptcy, Martina Hingis, autism, the 2006 NFL Draft and Celebrity Big Brother.

Surprised to see Paris Hilton topping the list of news searches? Sadly, me neither. Personally, I am not certain that she has ever done anything newsworthy, other than having proven a supreme talent for the uniquely cunning ability to stay in the headlines for no particularly meaningful reason.

It is substantially interesting that cancer was the third most searched for news topic this year. I know that those whose lives have been touched by cancer can feel very alone, and if this proves anything, we are certainly not alone in trying to sort through the many issues linked to cancer.

I'm Too Young For This! teens and young adults with cancer

I'm Too Young For This! (i2y) is a recently launched portal for adolescent and young adult (AYA) cancer survivors. Featured i2y resources and support services include survivor spa retreats, online forums and blogs, social networking, camping excursions, fertility education, peer counseling, and financial scholarships.

"The i2y website is primed to become a premiere online resource for AYAs with cancer by eliminating the stress and hassle of navigating through thousands of search engine results," said Matthew Zachary, founder and executive director of Steps For Living and an 11-year young adult survivor of pediatric brain cancer. "Our goal to make I'm Too Young For This! the first place adolescents and young adults with cancer think of to go when in search of credible, targeted support programs, tools and services."

"This website is just what the doctor ordered. Now, with the click of a mouse, they can instantly connect with a universe of others just like them." Doug Ulman, Chief Mission Officer for the Lance Armstrong Foundation and a 10-year young adult survivor says, "We are pleased that Steps For Living is dedicated to making a difference in cancer advocacy for this community."

To raise awareness for the i2y organization, the AYA Steps For Living musician/cancer survivors have released a 21-track benefit CD featuring their original songs and music. You can listen to the playlist here. Included in the album is an i2y online resource guide.

The tagline of i2y reads: Got Cancer? Under 40? Sucks, huh? Get Busy Living. Indeed, if you are between the ages of 15-39, i2y is a destination meant just for you. If you are a caregiver or friend of a teen or young adult who is facing the challenges of cancer survivorship, let them know about i2y. This is a phenomenal group of artists, musicians, writers and photographers who, as young adult cancer survivors, got busy living. Visit I'm Too Young For This! to learn more.

Managing anxiety and fear of breast cancer recurrence

Living Beyond Breast Cancer (LBBC) is hosting a free networking meeting to focus on anxieties and emotions that women experience during and after breast cancer.

Moving On: Managing Anxiety and the Fear of Recurrence will be held on Thursday, September 28th, from 6:00 p.m. to 8:30 p.m. at the Philadelphia Marriott West in West Conshohocken, PA.

Some topics will include the common anxieties and emotions women experience after completing treatment, the impact of breast cancer diagnoses on relationships and outlook on life and strategies and tactics for dealing with anxiety and fear of recurrence.

The meeting will offer an opportunity to enjoy a light dinner and refreshments with women who share the same experiences.

Thanks to Patti Anastasi for the tip.

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