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Thought for the Day: She cannot be silent

We cannot be silent is one slogan printed on specialty clothing offered by a company called Privacy. Other slogans include United We Cure and Mission. Purpose. Cure.

The slogans say a lot -- but the accomplishments of Carolyn Jones, Founder and President/CEO of Privacy, say a whole lot more.

Think about this:

Jones lost her mother to breast cancer on November 16, 2000 during a time when too many questions about the disease were left unanswered and not enough options were available for women fighting for their lives.

Times have changed, in part due to outspoken pioneers like Jones, who are spreading the word and funding the cause.

Part of the Privacy corporate goal is to support medical research and to educate women about early detection and treatment.

"It is very clear that more information and research is needed due to the yearly increase in new cases nationally," says Jones who cites statistics such as this: every 12 minutes a woman in America will die from complications associated with breast cancer. And this: more than 1,500 new cases of male breast cancer will be diagnosed this year.


Privacy, a California-based company with a social conscious, offers for both women and men an assortment of t-shirts, sweatshirts, jeans, hats, recommended books, accessories, breast cancer facts, and even a contest or two. A portion of all profits are donated to breast cancer initiatives with an emphasis on low-income and uninsured populations.

Check it all out right here.

More risk factors added to breast cancer list

Simply being female puts all women at risk for breast cancer. That and age, race, family history, personal history, genetic make-up, when they had children, when they reach menopause, and a whole host of other possible factors.

Now U.S. doctors are officially calling body mass index, breast density, and alcohol consumption predictors of the disease, says Therese Bevers, medical director of the Cancer Prevention Center, at the University of Texas M.D. Anderson Cancer Center in Houston.

Bevers helped write updated guidelines for the prevention of breast cancer and presented them at the 12th annual National Comprehensive Cancer Network in Hollywood, Florida on Friday.

The guidelines, featuring the revised list of risk factors, also offer treatment options for women -- including bilateral mastectomy for women who have tested positive for the genes BRCA1 and BRCA2 as well as possible medical treatments with drugs such as tamoxifen and raloxifene.

Thought for the Day: When options run out

Today I offer you not so much a Thought for the Day but a Question for the Day. Before I ask my pressing question, though, I want you to consider this story.

Diagnosed with a rare malignant melanoma on her retina in 2001, Ann Guthrie, a South Carolina wife and mother of two grown sons, endured radiation and chemotherapy. The treatments shrunk Guthrie's tumor, but another mass appeared two years later, forcing the removal of her right eye.

At about the same time Guthrie lost her eye, cancer was discovered in her lungs. It was inoperable. Then cancer landed in her brain. And now, without any approved treatment avenues, Guthrie is out of options.

Like many people with terminal illnesses, this woman is willing to try just about anything -- a clinical trial, experimental drugs, risky treatments -- to extend her life. If she's going to die anyway, why not? She just might live longer. And if she doesn't, she could at least help advance science by offering herself up as a sort of guinea pig.

While the Food and Drug Administration (FDA) has proposed changes that would make it easier for patients to access options like these, it's just not that simple right now.

There are ethical issues -- like weighing the needs of people who think anything is better than death against the need of society to prove drugs and treatments work safely. The only way to ensure a sort of balance is through clinical trials -- and letting anyone participate in clinical trials, for example, would make the results harder to interpret.

And there are medical and legal risks. What if terminally ill patients end up in worse shape after a treatment with an experimental drug, for example? What if the FDA or a physician is considered responsible for adverse drug reactions?

Denying terminal patients their last bits of hope is difficult. "It's a hard discussion to have with a patient and his family," says one doctor. "There's a lot of tears. We all would love to be able to get them access to some form of therapy."

And now for my question:

What do you think about terminally ill cancer patients and their access to anything that might extend -- or save -- their lives?

Breast cancer and second opinions

A new study shows that getting a second opinion when diagnosed with breast cancer can make a big difference for the patient. The researchers at the University of Michigan in Ann Arbor reported that more than half of breast cancer patients that sought a second opinion got a different recommendation for treatment. The second opinions were from a multidisciplinary tumor board. The board includes many specialists who treat breast cancer. The tumor board usually consists of surgeons, radiation oncologists, medical oncologists and pathologists working together to find the most optimal treatment for the patient.

Sometimes first treatment recommendations do not consider new techniques. The tumor board can help patients make those difficult treatment decisions they are faced with when diagnosed. Most of the time the patient will see the specialists individually. This can be fine and is what I encountered when diagnosed, however, more heads working together seem to be a better option especially if you are a breast cancer patient with a case that falls in one of those gray areas where the need for radiation or chemotherapy is questionable.

I think this approach is becoming a more popular way to find the best treatment option for breast cancer patients. If a tumor board is not something that you can utilize it is still in the patient's best interest to seek out a second opinion when they can to make sure they are hearing what all of their options are for better decision making.

Breast cancer cases keep surgeon busier than ever

My sister recently ran into the surgeon who removed my breast cancer tumor almost two years ago -- on December 3, 2004. He asked my sister how I was doing, recalled the unprecedented rash I developed from the latex and Tegaderm tape used during my lumpectomy, and then talked about how terribly busy he has been.

This surgeon -- who spends countless clinic hours with women whose breasts are somehow diseased and then spends day after day in operating rooms trying to remedy these diseases -- said he is amazed and at how many breast cancer cases are consuming his time. It's sad -- the amount of women showing up with breast cancer -- but there is a silver lining to this cancer cloud, because according to this surgeon, the vast majority of these breast cancer cases are early stage. This means they were caught swiftly and quickly. And for the women behind these cases, there is a good chance of long-term survival.

And so maybe all the pink and all the press surrounding breast cancer is working. Maybe it's inspiring women to pursue self-breast exams, clinical exams, mammography, and other screening options. Maybe all the persistence and passion about breast cancer is the reason for this early detection -- the key to a good prognosis.

My surgeon closed his chat with my sister by telling her to call him if anyone in our family ever needs anything. But he told her he hopes he never has to hear from us. My sentiments exactly.

Author Barbara Delinsky delivers another dose of UPLIFT

Author and breast cancer survivor Barbara Delinsky has just released an updated edition of her book UPLIFT: Secrets from the Sisterhood of Breast Cancer Survivors and like her previous editions, this one delivers inspiring real-life stories from real-life survivors -- like Deb Haney, an administrative assistant diagnosed in 1996 at age 48, who reveals her secret to surviving breast cancer in the workplace.

"My boss at the time was my brother. He suggested I go for radiation treatment in the morning, work a few hours, then go home and rest in the afternoons. That is what I did, because even though I looked great, I was unbelievably tired. When illness comes, we need to listen to our bodies and give them the time to rest and recover. I hadn't anticipated it, but those afternoon hours became a truly peaceful, nurturing time to read and rest and enjoy quiet time."

Delinsky offers a chapter in her book called A Workplace Manual -- it's a place where survivors like Haney share strategies that helped them maintain the crucial balance between cancer and work.

Delinsky writes, "What works for one woman may not work for another. What works in one job may not work in another. The thing is, you need to take a step back, think about yourself and your situation, then speak up about what may work for you. In every situation, you have choices, and the choices are all good. What pleases one woman may not please another."

And so the women featured in UPLIFT share their individual choices. And their choices become options for the millions of women surviving a disease that throws everything off balance.

Rosamary Amiet, a program manager diagnosed in 2000 at age 48, shares, "I juggled cancer and work by just giving up some things, like housework. I discovered that the house could go for weeks without being vacuumed or dusted -- and not only did the sky not fall, it didn't even crack!"

UPLIFT is not all about the workplace. It's also about chemotherapy and losing hair and losing breasts. It's about family and humor and men. It's about religion and exercise and diagnosis. It's about help. It's about hope. It's about sisterhood -- plain and simple.

Progress in field of lung cancer is mostly modest

Dr. Chandra Belani, Professor of Medicine and Oncology at the University of Pittsburg Cancer Institute, is a leader in the study of lung cancer. During a podcast interview, Belani shares some thoughts on the state of lung cancer -- currently the most common cause of cancer death in the United States.

Belani reveals that progress in the areas of lung cancer prevention, screening, diagnosis, and treatment can best be described as modest. There has been some progress -- and there are many on-going studies in these areas -- but there are no major breakthrough stories. Belani says there has been modest progress in diagnosis with the use of CT scans and PET scans -- and a combination of the two. There has been modest progress in chemotherapy treatment options. There has been no significant advance in detection -- and prevention is mostly in the hands of each individual since 90 percent of lung cancer cases are related to smoking.

Belani shares that true achievement would come with the discovery of a biomarker to detect lung cancer early and to lower overall mortality rates. He would also like to determine why he is seeing an increase in lung cancer cases among non-smokers.

The bar is being raised, says Belani. But it's slow going.

Survivor Spotlight: Cynthia Yousefi can handle anything now

Cynthia Yousefi is a wife and mother of three living in Granada Hills, CA. She is 42 years old and works as an analyst for a Federal agency. She and her family enjoy trips to Harrah's Rincon Casino in San Diego -- and while the destination is a favorite, the sights along the way also bring them pleasure. Cynthia enjoys museums and amusement parks and swimming and evening walks. She enjoys a lot these days because she feels she's been given a second chance at life -- now that she is surviving breast cancer.

Continue reading Survivor Spotlight: Cynthia Yousefi can handle anything now

Remember yearly screenings with free e-mail reminders

It can be hard to remember when it's time for check-ups and exams and screenings. Many come just once each year and with the swift passage of time, it's easy to forget our medical to-do lists. But missing an appointment -- or even delaying one -- can lead to missed and delayed diagnoses. So remembering these easy-to-forget chores is key. And perhaps reminders are the key to remembering.

The American Cancer Society offers a free mammogram reminder in the form of e-mail message sent each year to remind women to schedule their mammograms. It takes just a moment to register with an e-mail address and a preferred month and day of the year for this e-mail to arrive. To register for your yearly reminder, click here.

The College of American Pathologists offers a free reminder service for the following appointments -- blood donation, cholesterol screening, colon cancer screening, diabetes test, pap test, and mammogram. Click here to choose one or more of these options that also require just just an e-mail address and preferred month and date for delivery.

So forget that string around your finger -- reach for your computer keyboard right now. It takes just a few keystrokes to ensure prompt testing for the health issues that if detected early, can save our lives.

Cancer patient pulls out all the stops

Many patients either want to know everything that is going on with their diagnoses and treatment or they don't want to know any details and just will go along with what their trusted physician tells them.

I found myself as being the former patient mentioned and an extreme one at that. When I was diagnosed with breast cancer I researched as much as anyone possibly could. I wanted to know all the treatment options, prognosis, side effects and I wanted to know what chemotherapy drugs were available for my cancer and everything about them.

Robert Hudick is a patient that wants to know everything about his diagnosis of prostate cancer. He, like me, did all the research about his many options for treatment. Not everyone is lucky enough to have options but when you are faced with making your own treatment decisions it can be very difficult.

These days patients are becoming much more involved in the decisions that make up their treatment plan. Mr. Hudick decided to go even further with the way he took part in his own treatment. Robert not only researched but he changed his life completely. After an estimated 1000 hours of research, he decided he wanted a radical retopublic prostatecomy. Robert also lost 47 pounds to lessen the risk of his upcoming surgery, took yoga and imagery classes and tried Chinese medicine massage techniques.

These things are not for everyone, I myself did not go the alternative route to compliment conventional therapy, but being proactive in our own care is the message.

Sunday Seven: Seven survivors speak about recurrence

When I was first diagnosed with breast cancer almost two years ago, my greatest fear was losing my hair. The fear was consuming, painful, over-the-top. That was long ago -- and I survived. I can look back now and realize that the panic about losing my hair was such a small-scale fear -- compared to what I fear now. Now I fear a recurrence of cancer. And it's a whole lot more disabling than a little worry about being bald.

I have a few techniques for settling my fears when they get out of control. Sometimes I take deep breaths. Sometimes I distract myself and occupy my mind with something more pleasant than anxiety -- like writing, exercising, playing with my little boys. And sometimes I read about others who have come before me and have handled the same distress I sometimes feel about cancer taking up residence in my body again. Mostly I learn from stories of other women who have survived breast cancer. And I learn that I can handle the fear, that I can handle cancer if it does come back. And the women I find most inspiring are those who have had a recurrence -- or two or three -- and who still manage to happily tackle the life they have in front of them. They give me hope that if a recurrence comes my way, I too can conquer it. And here are seven snippets of hope from the book Hope Lives! The After Breast Cancer Treatment Survival Handbook -- from women who keep on surviving breast cancer.

Continue reading Sunday Seven: Seven survivors speak about recurrence

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