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Posts with tag resource

Cancer and Careers: A resource for working women with cancer

Worklife doesn't stop once you've been diagnosed with cancer. Many women have to--and want to--work during and after treatment. Cancer and Careers offers information and tools to help working women manage their battle with cancer as effectively as they manage the rest of their lives.

One great tool on the website is the paperwork section where you can find many guides including help with insurance issues, disability, financial assistance, legal assistance, health insurance and your legal rights in the workplace.

Make sure you take advantage of the Charts/Checklists section. It is amazing that cancer can actually seem like another job. Keeping your life organized with appointment logs, treatment charts and drug logs can really make life easier.

There are also many other resources on this website including emotional support, inner strength and taking charge tips.

Thought for the Day: Thinking about lung cancer

Have you been thinking about lung cancer and longing for the most reliable facts and figures on this number one cancer killer? If so, you're in luck because the National Lung Cancer Partnership has just released a new and free resource called Living With a Diagnosis of Lung Cancer. The booklet features basic questions about what a lung cancer diagnosis means.

"When people hear the words, 'You have lung cancer,' their mind starts racing, and they hear or remember very little of what comes next," said Dr. Joan Schiller, M.D., president of the National Lung Cancer Partnership. "Even in this age of the Internet with information at your fingertips, patients and their families often don't know what to ask or are intimidated about doing so. This booklet was designed to be an easy-to-read resource for many of the initial questions people might have, from what kinds of doctors will be treating you to whether or not a clinical trial is right for you."

Patients can access this resource online, where other links to additional resources are available.

Thought for the Day: I'm too young for this

There's this guy. His name is Matthew Zachary. He's a cancer survivor, a motivational speaker, a concert pianist, and the founder of a resource portal for young adults surviving cancer.

Steps for Living, Inc. -- also known as I'm too young for this -- was created by Zachary because he wants us all to know there are awesome cancer support services out there for adolescents and young adults. He means really awesome opportunities -- like spa retreats, online forums and blogs, social networking, camping excursions, fertility education, peer counseling, financial scholarships, and more.

You may be too young for cancer, but you are not alone, says Zachary whose mantra is Get Busy Living. And this is exactly what he is doing, despite challenges and setbacks in his own cancer recovery.

Think about this, an e-mail written by Zachary for those near and dear to his heart:

I am writing to share that I have suddenly gone deaf in my left ear. The condition is called Sudden Sensory Neural Hearing Loss.

After consulting with the country's best hearing experts as well as my oncologist, it has been determined that this is unequivocally a latent, long-term side effect of my post-operative cancer treatments from eleven years ago. Evidently, the excessive radiation dosages to the left hemisphere of my brain have caused irreparable neurological damage to my cochlea, which has ceased functioning.

There may be options (cochlear implants) but I will not know more for several weeks. As you can imagine, this is a devastating blow to my personal life and music career, especially since I remember fighting so hard to regain dexterity and muscle control in my left hand when it ceased functioning prior to my initial diagnosis in 1995.

That said, it has only reinvigorated me to stay the course and continue to advocate on behalf of the more than 500,000 young adults living with, through and beyond cancer each and every year. Now more than ever, I stress the importance of recognizing that remission is not a cure and that public awareness and adequate funding for adolescent and young adult cancer survivorship programming is tantamount to that of cancer research.

This is what it means to be a cancer survivor.

To read more about Zachary's powerful journey, click here for an unbelievably moving essay -- titled The Cost Of Living: No Cure For Cancer -- written by this unbelievably grounded guy.

Thought for the Day: Pink is the new black

Not everyone buys into the power of pink when it comes to breast cancer.

Pink ribbons, pink teddy bears, pink hats, shirts, scarves, socks, purses, jewelry, magnets, and even cooking appliances have monopolized the breast cancer market. And some people just plain refuse to associate the disease with anything remotely sweet, soft, and soothing.

Think about this:

Annette`s Angels, founded in 2006 by the children of Annette Roberta, love and applaud the effectiveness of the flood of pink used to raise awareness about a disease that took Roberta after a 15-year battle.

But they refuse to embrace any color but black as they proceed to kick breast cancer in the butt. Black reflects their anger at breast cancer. And their power to fight it.

Annette's Angels are committed to fighting this terrible disease, and they invite us all to shop at their online store, where some items -- there's just no way around it really -- are pink. The angels will donate 50 percent of all profits to
FORCE: Facing Our Risk of Cancer Empowered, the only resource of its kind for those facing genetic breast and ovarian cancers.

Support to Go: The Unbook for the Journey Through Breast Cancer

My nose was buried in books just after my breast cancer diagnosis. I craved information and thought the pursuit and acquisition of it would somehow help me gain control over a seemingly uncontrollable disease.

For the most part, reading helps me. But sometimes, I read too much -- "Stop reading", my oncologist instructed me one day after I rambled off a bunch of worries I'd gathered from research -- and I've been known to get overwhelmed by statistics and numbers and theories and clinical jargon. When this happens, I usually find refuge in the personal stories of women living with breast cancer. Those who have weathered the cancer storm are often the real experts on cancer and know how to sift through the details, offering just what's important to all who follow.

For more than a decade, two-time breast cancer survivor Pat McRee searched for the perfect guide she could recommend for women she saw at the Flying Colors cancer resource and support center she directs.

"Too long," "Too detailed," "Overwhelming," "Just plain scary," were the responses she heard about the books she had found.

So she decided to think outside the book, to create her own support guide. An unbook is what she calls it. And it's not too long, too detailed, too overwhelming, or too scary.

Support to Go, The Unbook for the Journey through Breast Cancer is instead a compilation of survivor secrets, affirmations, inspiring quotations, poetry, song lyrics, attitude buttons, funny anecdotes, and referrals to expert resources in oncology, radiology, surgery, psychology, and complementary therapies.

McRee considers her book a support group of sorts, a place where survivors can turn their wild rides into unforgettable journeys.

New Arizona cancer center opens doors tomorrow

Cancer patients receiving treatment at the Arizona Cancer Center in Tucson will walk through the doors of a new building -- the Fasseas Cancer Center-- beginning tomorrow morning.

The new center, named after major donors Peter and Paula Fasseas, is built on the skeleton of a defunct Tucson hospital. It took 16 months to build and cost an estimated $30 million. And now the comprehensive cancer center is ready for use.

More than 800 cancer patients have appointments during the first week, and 110 medical staff will relocate to the new clinic that has been called the crown jewel of new University Medical Center North Campus and one of the most modern cancer treatment centers in the United States.

The new two-story clinic -- to be joined later by facilities for radiation oncology, ambulatory surgery, imaging services, and a Ronald McDonald House for pediatric patients and their families -- will feature patient support groups, counseling, therapeutic massage, a healing garden, a resource center, and a salon to help patients cope with hair loss and other side effects of cancer treatment.

A formal grand opening for the new clinic is planned for February 18.

Cancer help delivered to mailbox, for free

Living Beyond Breast Cancer (LBBC) -- a nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life -- recently began offering a new resource for breast cancer survivors, for both the newly diagnosed and those with metastatic disease.

"The first few weeks after diagnosis can be extremely difficult emotionally, and women with advanced disease often do not get the support and resources they need," said Jean Sachs, LBBC executive director. "We want to give them an understanding of their choices to help them make informed decisions regarding their physical and emotional health."

This understanding comes in the form of a 28-page brochure -- What to expect . . . today, tomorrow and beyond: Steps for coping with the medical, emotional and practical concerns of breast cancer -- available free on the Internet or by request. This guide, a road map, addresses topics such as coping with the news of a new diagnosis, telling family and friends, understanding pathology reports, choosing a medical team, asking for help, and finding support.

LBBC offers multiple addidtional resources -- including specialized navigation tools on its website that lead to a wealth of information. Visitors can Learn More about LBBC. They can Stay Informed through news, message boards, and other resources. They can Participate in events and programs. And they can Support LBBC through volunteer efforts and financial donations.

LBBC was founded in 1991 by a radiation oncologist who focused exclusively on meeting the needs of women post-treatment. She ran the organization out of the third floor of her home using volunteers. Few resources existed for women affected by breast cancer at the time, and so she tried to fill the void. In 1986, an executive director came on board, increased the LBBC budget from $100,000 to $1.8 million per year, expanded all programs and services, and worked to secure LBBC as a solid, dependable resource for all women, of all stages of breast cancer and in all phases of treatment and recovery. And now, in 2006, that is exactly what it is.

Magazine reaches for women living beyond breast cancer

There's a bit of breast cancer news in just about every magazine out there -- news about treatments and protocols and studies, news about celebrity diagnoses, news about lives lost to breast cancer and lives conquering breast cancer, news that is scattered here and there and everywhere. But now, there is a magazine all about breast cancer -- and just about breast cancer. All sorts of breast cancer wisdom is conveniently packaged into one slick, glossy publication that debuted on newsstands yesterday, September 19.

Beyond: Live & Thrive After Breast Cancer is a semi-annual publication from Meredith Special Interest Media, part of the Meredith Corporation -- a leading media and marketing company and home to magazines such as Better Homes and Gardens, Ladies' Home Journal, Parents, and Fitness. Meredith's new breast cancer venture provides women living with the disease -- and those who may one day encounter it -- with support and with the latest information on treatment and recovery.

The Fall/Winter 2006 premiere issue of Beyond features a cover story about Dallas Mayor Laura Miller, a survivor forging ahead into a life beyond breast cancer. Also filling the pages are inspiring real-life profiles and stories, nutritional advice, up-do-date medical information, fashion tips, the Pink Pages -- a resource guide that details upcoming races and products that support breast cancer -- and much more.

Behind the scenes of this issue is an advisory board of leading experts in the breast cancer field. Experts include Susan Brown, the health manager at Susan G. Komen Foundation; Carolyn M. Kaelin, director of Comprehensive Breast Health Center and breast cancer survivor; and Lillie Shockney, Administrative Director at Johns Hopkins Breast Cancer.

If there is one theme common to women surviving breast cancer, it must be the desire to live beyond the control of this life-threatening and life-changing illness, to recapture an existence that resembles something normal, to embark on a journey outside the confines of cancer. Tips, techniques, strategies, and inspiration for accomplishing these feats are printed on the pages of this new magazine that is sure to reach its intended audience -- that today includes two million women who are living with breast cancer.

Prostate Cancer: interactive web tool for men

The Prostate Cancer Research Foundation of Canada has launched an interactive web resource to assist men in facing prostate cancer and in finding answers regarding prostate cancer diagnosis, treatment and survivorship.

Called Prostate Cancer Assessment Tools (PCATs), each of the 12 PCATs provides individualized information that will help each man better understand prostate cancer.

A sampling of the PCATs are as follows:
  • Based on age, PSA, percentage of free PSA, and DRE findings what is the likelihood that I have cancer, if a biopsy is performed?
  • Based on the characteristics of my cancer, what is the likelihood that the Gleason sum found on biopsy is higher than the Gleason sum on final pathology, when the prostate is removed?
  • Based on the characteristics of my cancer, what is the likelihood that the cancer has spread beyond the capsule of the prostate?
  • Based on my PSA, cancer stage at DRE, biopsy Gleason sum, the cumulative length (mm) of cancer on all biopsy cores and on the percentage of positive cores, what is the likelihood that my cancer is clinically significant (i.e., one that may kill)?
  • Based on my cancer characteristics what is the likelihood that my cancer represents a (TZ) transition zone cancer?
  • Based on the characteristics of my cancer, what is the likelihood that my PSA will increase and indicate a relapse of my prostate cancer after radical prostatectomy?
To learn more, and to make use of this interactive tool, visit the Prostate Owners Manual.

Cancer Buddy Network: new cancer community

Faced with a cancer diagnosis, or any challenging life event, you want to talk to someone who has already experienced what you are about to experience. You want to find stories about other people who have overcome adversity, preferably told by the people who went through it first-hand. You want to know what to expect.

Last year, when Katherine Brown's mother-in-law Ruth was diagnosed with Lymphoma, she went on an internet search to find people Ruth could talk to, who knew what it was like to be diagnosed with cancer, be inspired by the personal stories of triumph over the trials and tribulations of a cancer diagnosis and cancer treatment and cancer survivorship.

After an extensive internet search for the kind of community Ruth could connect with, Brown came up empty-handed. As need is the mother of all invention, Brown decided to create what she was looking for and could not find.

The Cancer Buddy Network is a result of Brown's vision. At the Cancer Buddy Network, you create an account; tell your story; be a buddy. Newly-diagnosed cancer patients, family members and friends, and cancer survivors are welcome. It is the blend of cancer patients, cancer survivors and the loved ones touched by cancer that brings real life hope and inspiration in cancer community support. The Cancer Buddy Network is a recent web destination and it looks very well done. Stop by and give it a look, add your voice to hope.

Canadian resource for young women with breast cancer

Pink Strokes is dedicated to making a difference today for the daughters of tomorrow.

I met Allison Roberts at one of the Young Survival Coalition conferences. I learned of her website called Pink Strokes. Pink Strokes is a non-profit organization that seeks to raise awareness and assist in providing information and support to young women diagnosed with breast cancer.

Allison was diagnosed with breast cancer in December 2002 at 32 years old. She was delayed diagnoses and was told that she had lumpy breast tissue, that she was too young and that cancer didn't hurt. Allison had been having pain in her breast and eventually noticed a lump under her armpit. She did as I did and trusted her doctors when they said it was nothing to worry about.

Allison was diagnosed with a 3cm tumor in the breast and positive lymph nodes. She needed chemotherapy and radiation for her aggressive cancer.

Allison says "It really became obvious to me that I wanted to do more when my husband signed up to walk in The Weekend to End Breast Cancer, a 60 km. walk through Toronto streets". That next year Allison walked herself with a team called Ali's Alliance of Angels and raised over twelve thousand dollars.

Together they organized their first golf tournament to raise money for the walk called Pink Strokes.

Allison's son Tyler asked his mom, "Mommy is breast cancer over yet"? Allison told him "Someday breast cancer will be over"!

NC resource directory for breast cancer

Statistics in North Carolina show that breast cancer is the most common cancer diagnosed in women statewide and the second leading case of cancer related deaths statewide. Lung cancer is first. The new Breast Cancer Resource Directory of North Carolina is now available and can be found at the N.C. Center for Genomics and Public Health located in the UNC-Chapel Hill School of Public Health. The directory is free. You can also call (800) 514-4860 or email bcresources@med.unc.edu if you are a NC resident and receive a free copy.

The directory covers many topics for women diagnosed or in a high risk category for breast cancer like diagnosis and treatment, insurance and finances, a listing of support groups, and a listing of cancer treatments at hospitals in North Carolina. The NC Triangle Affiliate of the Susan G. Komen Breast Cancer Foundation is a longtime sponsor of the project along with the Breast Cancer Coalition of North Carolina, the N.C. Center for Genomics and Public Health and UNC Lineberger Comprehensive Cancer Center.

New Spanish language breast cancer web resource

University of Wisconsin-Madison Center of Excellence in Cancer Communications Research has launched a comprehensive new website for Spanish-speaking breast cancer patients and their families. The new Spanish-language site, called Conviviendo con el Cancer de Seno, is a cultural and linguistic translation of an existing online resource called Living with Breast Cancer.

"To the best of our knowledge, this new site is the most comprehensive and culturally relevant resource on the Web for Latinas with breast cancer," says Susana Torres-Corona, project manager. "The site offers an extensive database of original content, and it also serves as an information clearinghouse linking directly to other high-quality educational materials in Spanish for Latinas created by trusted sources such as the National Cancer Institute, the American Cancer Society and the Susan G. Komen Breast Cancer Foundation."

First, I am embarrassed to admit that I cannot speak Spanish. Second, I feel odd in posting this in English. After all, the information about a resource for Spanish-speaking breast cancer patients seems like it would be far more effective in reaching its target audience if it was written in Spanish. But there you go -- here it is -- if you speak English and know of a breast cancer survivor who speaks Spanish, let them know about this new web resource.

Update: If you will check the comments following this post you will find the Spanish language version of this information -- and an explanation of how this information is being distributed to the Spanish-speaking community. Many thanks! to Bret Shaw.

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