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Posts with tag strategies

Ignite the Promise: Global Advocate Summit

My friend and fellow young breast cancer survivor has received a great honor to serve as one of the 55 delegates representing breast cancer advocates worldwide at Ignite the Promise: Global Advocate Summit in Hungary.

I'm so proud of you Deb!

This press release says it all:

Deb Kirkland, of Baltimore, MD, has been selected to serve as one of 55 delegates representing breast cancer advocates worldwide at "Ignite the Promise: Global Advocate Summit" in Budapest, Hungary, Sept. 29-30, 2007.

Organized by Susan G. Komen for the Cure, the world's largest grassroots network of breast cancer survivors and activists, the summit will pair the 25 U.S. breast cancer advocates with their counterparts from 30 countries. The overarching goals for holding this international summit are to elevate the dialogue on breast cancer's global impact and to share strategies used to combat breast cancer in the delegates' local communities

"Each year, more than 1 million women worldwide receive a breast cancer diagnosis," said Nancy G. Brinker, founder of Susan G. Komen for the Cure. "The need to provide these women-regardless of race, nationality, or socioeconomic status-an equal opportunity to beat a breast cancer diagnosis has never been greater. This summit will enable advocates to share outreach tactics that have been implemented in the U.S. and elsewhere to meet our collective goal of saving lives and ending breast cancer forever."

Continue reading Ignite the Promise: Global Advocate Summit

Let's talk about sex: Reclaiming intimacy after breast cancer

This networking event called Let's Talk About Sex: Reclaiming Intimacy After Breast Cancer will focus on sexuality and intimacy after a breast cancer diagnosis.

Join Living Beyond Breast Cancer (LBBC) on Wednesday, May 30, 2007, from 6:00 p.m. to 8:30 p.m. at the Philadelphia Marriott West in West Conschohocken, PA.

Featured speaker Kara Nakisbendi, MD will provide a candid and caring discussion about intimacy after a breast cancer diagnosis and how to reclaim sexuality to improve quality of life.

Continue reading Let's talk about sex: Reclaiming intimacy after breast cancer

Sunday Seven: Seven strategies for sleeping through cancer

What a gift it would be if it were possible to sleep through cancer, literally sleep through the entire experience -- from diagnosis through the end of treatment -- and wake up on the other end of the bad dream. Unfortunately, this isn't possible. We must be alert and aware and active in our own plans for survival. All we are typically permitted are now-and-then naps and nighttime sleep -- if we can manage to actually sleep at night.

My sleep was never disturbed during my cancer journey. Night after night, just after my head hit my pillow, my body drifted right to sleep -- only waking for brief trips to the bathroom and to get out of bed the next day. I might have had an occasional sleepless night. But for the most part, I count myself as one lucky cancer patient, blessed with restful and regular sleep.

Not all cancer patients are privileged sleepers. And with all I was enduring during my own cancer ordeal -- emotions, hospitalizations, treatments, side effects, and pain -- it's a wonder I was able to manage so well in the sleep department.

Sleep is critical for maintaining strength and energy while fighting cancer -- while living life in general really. When nighttime sleep is disrupted, interrupted, or downright impossible, normal functioning and healing are compromised. So the quest for good, quality sleep should make its way to the top of your cancer to-do list. And if you are not sure just how to begin such a quest, consider these seven strategies for sleeping through cancer -- compliments of Marie-Helene Savard, doctoral student in psychology, and Dr. Josee Savard, associate professor and researcher of psychology at Laval University Cancer Research Center in Quebec, Canada.
  • Set aside at least one hour to relax before going to bed.
  • Go to bed only when you feel sleepy -- which is not the same as fatigue.
  • If you can't fall asleep or can't go back to sleep after 20 or 30 minutes, get out of bed and leave the bedroom. Do something else -- and only go back to bed when you feel sleepy again. Repeat as necessary.
  • Get up at the same time every day -- regardless of how much sleep you got. Use an alarm clock to wake.
  • Use your bedroom only for sleep and sexual activities. Avoid reading, working, watching TV, or listening to the radio in the bedroom.
  • Avoid napping. If you must take a nap, do so before 3:00 PM and for less than one hour.
  • Keep realistic expectations about sleep -- avoid worrying about the amount of sleep you should have or the amount of time it takes you to fall asleep -- and try to become tolerant of your lack of sleep.
Sweet dreams.

Visit with oncologist prompts same old routine

I will visit my oncologist on Monday for my every-three-month check-up. It's the recurring appointment that will appear on my calendar until I hit the five-year-survival milestone. I am three years away.

It's the appointment that consumes at least half of my day due to endless waiting -- waiting for a parking spot, waiting in the lobby, waiting in the exam room, waiting to pay. It's the appointment that officially begins with the drawing of my blood for lab work, continues with a check of my vitals, proceeds with a history review and physical exam with a medical student. It's the appointment that brings me face to face with the man who prescribed my treatment, the man who offers me strategies for living beyond treatment, the man who helps keep me alive. My oncologist.

And so I am preparing for this visit in the same exact way as I always do. I set aside a large chunk of time for this time-consuming extravaganza. I think a lot about the lab work and wonder if something suspicious will surface. I think a lot about the physical exam and wonder if an enlarged lymph node or mass in my breast will be discovered. And I think a lot about what I want to ask -- because this is my only very own allotted time for unraveling the mysteries of cancer with the man who knows the topic like no one else I know.

On Monday, I will ask a few questions. I will ask about tumor markers, about why I am not tested for these indicators of tumor growth, a standard option for my co-writer and co-cancer survivor Kristina Collins. I will ask about Zoloft, about how long I should continue taking this anti-depressant and how to best wean myself from this drug when the time comes. I will ask about the flu shot, about whether or not I can get one during this same appointment.

And that's all. For now. Until three more months pass and my calendar tells me it's time to return for this recurring appointment that takes me closer to the five-year mark.

Author Barbara Delinsky delivers another dose of UPLIFT

Author and breast cancer survivor Barbara Delinsky has just released an updated edition of her book UPLIFT: Secrets from the Sisterhood of Breast Cancer Survivors and like her previous editions, this one delivers inspiring real-life stories from real-life survivors -- like Deb Haney, an administrative assistant diagnosed in 1996 at age 48, who reveals her secret to surviving breast cancer in the workplace.

"My boss at the time was my brother. He suggested I go for radiation treatment in the morning, work a few hours, then go home and rest in the afternoons. That is what I did, because even though I looked great, I was unbelievably tired. When illness comes, we need to listen to our bodies and give them the time to rest and recover. I hadn't anticipated it, but those afternoon hours became a truly peaceful, nurturing time to read and rest and enjoy quiet time."

Delinsky offers a chapter in her book called A Workplace Manual -- it's a place where survivors like Haney share strategies that helped them maintain the crucial balance between cancer and work.

Delinsky writes, "What works for one woman may not work for another. What works in one job may not work in another. The thing is, you need to take a step back, think about yourself and your situation, then speak up about what may work for you. In every situation, you have choices, and the choices are all good. What pleases one woman may not please another."

And so the women featured in UPLIFT share their individual choices. And their choices become options for the millions of women surviving a disease that throws everything off balance.

Rosamary Amiet, a program manager diagnosed in 2000 at age 48, shares, "I juggled cancer and work by just giving up some things, like housework. I discovered that the house could go for weeks without being vacuumed or dusted -- and not only did the sky not fall, it didn't even crack!"

UPLIFT is not all about the workplace. It's also about chemotherapy and losing hair and losing breasts. It's about family and humor and men. It's about religion and exercise and diagnosis. It's about help. It's about hope. It's about sisterhood -- plain and simple.

Magazine reaches for women living beyond breast cancer

There's a bit of breast cancer news in just about every magazine out there -- news about treatments and protocols and studies, news about celebrity diagnoses, news about lives lost to breast cancer and lives conquering breast cancer, news that is scattered here and there and everywhere. But now, there is a magazine all about breast cancer -- and just about breast cancer. All sorts of breast cancer wisdom is conveniently packaged into one slick, glossy publication that debuted on newsstands yesterday, September 19.

Beyond: Live & Thrive After Breast Cancer is a semi-annual publication from Meredith Special Interest Media, part of the Meredith Corporation -- a leading media and marketing company and home to magazines such as Better Homes and Gardens, Ladies' Home Journal, Parents, and Fitness. Meredith's new breast cancer venture provides women living with the disease -- and those who may one day encounter it -- with support and with the latest information on treatment and recovery.

The Fall/Winter 2006 premiere issue of Beyond features a cover story about Dallas Mayor Laura Miller, a survivor forging ahead into a life beyond breast cancer. Also filling the pages are inspiring real-life profiles and stories, nutritional advice, up-do-date medical information, fashion tips, the Pink Pages -- a resource guide that details upcoming races and products that support breast cancer -- and much more.

Behind the scenes of this issue is an advisory board of leading experts in the breast cancer field. Experts include Susan Brown, the health manager at Susan G. Komen Foundation; Carolyn M. Kaelin, director of Comprehensive Breast Health Center and breast cancer survivor; and Lillie Shockney, Administrative Director at Johns Hopkins Breast Cancer.

If there is one theme common to women surviving breast cancer, it must be the desire to live beyond the control of this life-threatening and life-changing illness, to recapture an existence that resembles something normal, to embark on a journey outside the confines of cancer. Tips, techniques, strategies, and inspiration for accomplishing these feats are printed on the pages of this new magazine that is sure to reach its intended audience -- that today includes two million women who are living with breast cancer.

Managing anxiety and fear of breast cancer recurrence

Living Beyond Breast Cancer (LBBC) is hosting a free networking meeting to focus on anxieties and emotions that women experience during and after breast cancer.

Moving On: Managing Anxiety and the Fear of Recurrence will be held on Thursday, September 28th, from 6:00 p.m. to 8:30 p.m. at the Philadelphia Marriott West in West Conshohocken, PA.

Some topics will include the common anxieties and emotions women experience after completing treatment, the impact of breast cancer diagnoses on relationships and outlook on life and strategies and tactics for dealing with anxiety and fear of recurrence.

The meeting will offer an opportunity to enjoy a light dinner and refreshments with women who share the same experiences.

Thanks to Patti Anastasi for the tip.

Sunday Seven: Seven steps for securing a sane schedule

Cancer has helped me slow down -- a little. I am more patient in the moment without racing to the next task I think is waiting for me. I can better manage my priorities and can offer the most important things the majority of my time. I am better at passing on opportunities that are low on my wish list. And I can typically say "no" if I don't have the time or energy to devote to a request. I know that I have to be healthy and happy and fulfilled in order to operate effectively and joyfully in this world. So I try to enjoy peaceful moments and put priorities first and not overextend myself and slow down. I'm not completely there -- yet. But I plan to keep practicing. And I'm going to try these seven strategies -- offered by a freelance writer, wife, mother of two, and reformed over-committer -- in an article I stumbled across in a local family magazine I picked up this week.

Continue reading Sunday Seven: Seven steps for securing a sane schedule

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